COPD & Emphysema Support Group
COPD is a progressive disease characterized by airflow obstruction or limitation. Emphysema is characterized by loss of elasticity of the lung tissue, destruction of structures supporting the alveoli and of capillaries feeding the alveoli. Both have symptoms that include shortness of breath, among other respiratory troubles. If you are a COPD or Emphysema sufferer, join...
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Folks, I have updated, that you created months ago. Hopefully this will be helpful. I will continue to update or revised as necessary based on your comments and concerns. Remember folks this is by no means to be considered a complete list, this is just a guide, a guide that was created by us. Add to it to make it your own.
Take care -- Bill
Revised 04/10/14
Cleanliness
Keep your hands washed and use antibacterial wipes on surfaces such as phone, microwave, fridge, places a lot of people touch
Avoid strong odors.
Wash hands frequently.
Keep house free of dust as possible
Sterilize things that others touch.
lysol spray & clorox wipes
Try for an ozone and allergy alert free day. But always have a mask just in case, bacterial handy wipes, and a list of meds that you are on.
Air conditioner and mucine
Halo, (an oral spray that protects against airborne germs) whenever out in public.
Paperwork
Have copies of your important paperwork such as:
Advanced Directive
DNR
Will
Power of Attorney
Emergency Contacts (including Name, address and phone numberS
Insurance card
Drivers license
Major Credit card
Medicines
Insulin
flu shots and check on pneumonia updates plus shingles, tetanus and whatever else your doctor recommends.
Eat right, keep up on your meds, and refills up to date, if possible store in a water proof container.
I'd like to add that there are definitely times when we absolutely need to Get Thee To a Hospital - self-diagnosis can oftentimes make matters worse(which I've learned from this group). I have an emergency responder (push the button and my pre-defined series of events takes place). I live alone so this type of setup is imperative.
Always have on hand an emergency prednisone and antibiotic ( if you use one with the prednisone)
If possible keep emergency inhalers in the rooms that you use on a daily basis..
Gotta remember too to keep a simple journal of important info that you check regularly... things like peak flow levels, weights, blood pressures, pulse rate, pulse ox levels, blood sugar levels and any other monitoring that allows you to personally follow your norms and any changes in them. Subtle changes can be the start of something BIG and not so good!
Understand the impact some medicines have on your body -- for some prednisone can be the root cause of sleeping difficulties and getting constipated
Rescue Inhalers
If your doctor will allow or if your cagey enough keep a stash of your most helpful drugs keep a list of the drugs you take when you take them, and the doctor that prescribed them close by at all times.
Update the list at least once a month or whenever you add or delete a
medicine
Emergency supply of Doxycycline and Prednisone to take on out-of-country trips.
If I get sick, I can take these medications to keep the illness from deteriorating into pneumonia before I can get home
The Nettie pot, or what ever you call that little thing you rinse your nasal passages out with so you can breath.
Emergency to go bag -- you should consider having a pre-packed bag that you can just grab and go, if there is an emergency that requires you to be taken to the hospital, here is a partial list of what should be in that bag
A clean change of clothes (at least one complete set, and extra undies)
Personal hygiene supplies
Copies of your important paperwork (see above)
Your cell phone charger
Rescue Inhaler
Equipment
Oxygen supply not dependent on electricity
A/C by all means if possible
Cell phone for dialing 911 during power outages
Old analog phone that does not require electricity for use
A note - often cell towers may go down during power outages
(they have backup generators that will often fail to start). I have
a land line and a simple telephone in addition to a UPS backup on my wireless telephone and internet modem...
Get a portable nebulizer
Nebulizer
Spare hoses and cannulas and connectors
I have on hand a home concentrator, portable concentrator , portable
small tanks of compressed air with a regulator that allows pulse
and continuous LPM , a larger tank of compressed air on cart and the phone number close for the supplier in case of electric outage.
I also have on phone directly connected to the land line jack and use portables in the major rooms otherwise. The landline is always available unless AT&T fails (OR WHOEVER YOUR PROVIDER IS)
air purifier
Daily Routine
Healthy diet and exercise of some kind each day.
And enough sleep
Do all that you can to keep a good attitude.
Create a safe haven "nice relaxing place," to get well
Avoid as much as possible people who are sick
Have a breathing practice that works for you --- diaphragm or pursed-lip and practice that method for emergencies
Use the wipes to clean your phone, computer keyboard, stair rails, TV remote and other things you think necessary.
Do some type of upper and lower body exercise each day. Even if you can only manage a few minutes, you can build on that.
Continued membership in this group
When eating, eat slowly and small bites, limit beverages to after the meal and try to eat 3 or 4 small meals a day instead of 1 larger one.
Always use the bacterial wipes at the stores that furnish them on the cart that you touch and pull extra ones to use when you touch the foods that we know have bacterial problems, such as chicken packages.
Limit your times out to your energy level. Save the rest for another day.
Improve your daily schedule does work, it seems to help improve your life obsessing over your schedule can become depressing so relax as much as you can
Folks, I have tried to make it easier to read here, but understand if you cut and paste into word it could look a bit messed up.
Take care -- Bill
Revised 04/10/14
Cleanliness
Keep your hands washed and use antibacterial wipes on surfaces such as phone, microwave, fridge, places a lot of people touch
Avoid strong odors.
Wash hands frequently.
Keep house free of dust as possible
Sterilize things that others touch.
lysol spray & clorox wipes
Try for an ozone and allergy alert free day. But always have a mask just in case, bacterial handy wipes, and a list of meds that you are on.
Air conditioner and mucine
Halo, (an oral spray that protects against airborne germs) whenever out in public.
Paperwork
Have copies of your important paperwork such as:
Advanced Directive
DNR
Will
Power of Attorney
Emergency Contacts (including Name, address and phone numberS
Insurance card
Drivers license
Major Credit card
Medicines
Insulin
flu shots and check on pneumonia updates plus shingles, tetanus and whatever else your doctor recommends.
Eat right, keep up on your meds, and refills up to date, if possible store in a water proof container.
I'd like to add that there are definitely times when we absolutely need to Get Thee To a Hospital - self-diagnosis can oftentimes make matters worse(which I've learned from this group). I have an emergency responder (push the button and my pre-defined series of events takes place). I live alone so this type of setup is imperative.
Always have on hand an emergency prednisone and antibiotic ( if you use one with the prednisone)
If possible keep emergency inhalers in the rooms that you use on a daily basis..
Gotta remember too to keep a simple journal of important info that you check regularly... things like peak flow levels, weights, blood pressures, pulse rate, pulse ox levels, blood sugar levels and any other monitoring that allows you to personally follow your norms and any changes in them. Subtle changes can be the start of something BIG and not so good!
Understand the impact some medicines have on your body -- for some prednisone can be the root cause of sleeping difficulties and getting constipated
Rescue Inhalers
If your doctor will allow or if your cagey enough keep a stash of your most helpful drugs keep a list of the drugs you take when you take them, and the doctor that prescribed them close by at all times.
Update the list at least once a month or whenever you add or delete a
medicine
Emergency supply of Doxycycline and Prednisone to take on out-of-country trips.
If I get sick, I can take these medications to keep the illness from deteriorating into pneumonia before I can get home
The Nettie pot, or what ever you call that little thing you rinse your nasal passages out with so you can breath.
Emergency to go bag -- you should consider having a pre-packed bag that you can just grab and go, if there is an emergency that requires you to be taken to the hospital, here is a partial list of what should be in that bag
A clean change of clothes (at least one complete set, and extra undies)
Personal hygiene supplies
Copies of your important paperwork (see above)
Your cell phone charger
Rescue Inhaler
Equipment
Oxygen supply not dependent on electricity
A/C by all means if possible
Cell phone for dialing 911 during power outages
Old analog phone that does not require electricity for use
A note - often cell towers may go down during power outages
(they have backup generators that will often fail to start). I have
a land line and a simple telephone in addition to a UPS backup on my wireless telephone and internet modem...
Get a portable nebulizer
Nebulizer
Spare hoses and cannulas and connectors
I have on hand a home concentrator, portable concentrator , portable
small tanks of compressed air with a regulator that allows pulse
and continuous LPM , a larger tank of compressed air on cart and the phone number close for the supplier in case of electric outage.
I also have on phone directly connected to the land line jack and use portables in the major rooms otherwise. The landline is always available unless AT&T fails (OR WHOEVER YOUR PROVIDER IS)
air purifier
Daily Routine
Healthy diet and exercise of some kind each day.
And enough sleep
Do all that you can to keep a good attitude.
Create a safe haven "nice relaxing place," to get well
Avoid as much as possible people who are sick
Have a breathing practice that works for you --- diaphragm or pursed-lip and practice that method for emergencies
Use the wipes to clean your phone, computer keyboard, stair rails, TV remote and other things you think necessary.
Do some type of upper and lower body exercise each day. Even if you can only manage a few minutes, you can build on that.
Continued membership in this group
When eating, eat slowly and small bites, limit beverages to after the meal and try to eat 3 or 4 small meals a day instead of 1 larger one.
Always use the bacterial wipes at the stores that furnish them on the cart that you touch and pull extra ones to use when you touch the foods that we know have bacterial problems, such as chicken packages.
Limit your times out to your energy level. Save the rest for another day.
Improve your daily schedule does work, it seems to help improve your life obsessing over your schedule can become depressing so relax as much as you can
Folks, I have tried to make it easier to read here, but understand if you cut and paste into word it could look a bit messed up.
i didn't notice this on the lise, but i keep a list on my wall by my meds of;
1 what medicine i take & at what time
2. allergies to food & meds
3 emergency call numbers (family)
4 dr phone numbers & hospital #
5 all my "conditions"
6. instructions for care of my dog & a couple of people phone #'s that would come care for her if needed.
it was a simple list to make up & i have it so i can just grab it & go if ever an emergency...
i also furnished each of my children a copy to keep with their medical power of attorney.
i update it yearly or if i have a change of medications
so nice to have a computer to just cut & paste new info into a saved document.....
ah, the days i had to type things out & use "white out" to fix the mistakes :)