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Well it finally happened, I been put on 0xygen
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Went to the Dr. the other day(power has been out every since) and he said I needed to be on oxygen at night and during activities. Sounds like all the time to me. Any way, I was diagnosed 5 years ago and was told to exercise. I walk 2.25 miles almost every morning and have been doing this for the last 5 years. The reason I was going to the Dr to start with was I noticed the Foraldil did not seem to be doing much recently. He then changed me to Advair HFA; I immediately got a cold that went to my chest, called and said stop the Advair and start the Foraldil, I did and the infection cleared, he then said start the Advair again, I did and was overwhelmed by the amount of flem. I went back to discuss this and get a new med, while there I told him my Pulse Oxmiter indicated my O2 level was going down to 79% during my morning wald at the peak speed of 4.1 MPH. He had one of the nurses walk me around the building with a pulse oxmiter on and it went down to 87%. He the wrote the script for O2 and rushed me out the door. Just wondering if anyone else feels if maybe he should have at least listened to my breathing or have had other test done.
By the way he put me on arcapta neohaler, so I'll be able to give some feed back on how it works in a week or so. Also, I am still working so not sure how the O2 will affect work. I made an appointment for this Friday to discuss this and any other questions I can come up with between now and then. Ayn Ideas for questions, I get a lot of information off here, not often do I post, but, I really needed the souinding board and the help of your expertise. Thanks and everyone have a good day, hopefully not as hot and humid as the last couple. At lease I have once again been blessed with electricity. Posted on 07/03/12, 10:27 am |
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Have you discussed other ways to manage without the Oxygen? I'm terribly sorry you've been going through so much and with someone who doesn't seem to have your best interests at heart. I would definitely seek someone out who's looking out for you and not someone who's focused on how many patients they can fit in an hour.
Until you find someone else to tend to your needs, I found some information that might help. It's a nutritional guide but it's actually geared on how to eat and breathe better when you're done. I know the hardest time my family had was when they were eating. If they ate too much it there wasn't enough room for them to breathe and it was just awful. I hope this helps, and I wish you all the best! http://www.healthline.com/health/co... 
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Well my appointment yesterday went well. I guess I gave everyone the impression I didn't like my Dr. he is OK, I think he had a bad day and forgot he was treating a person instead of a disease. He set up an overnight breathing study and relented that a Blood Gas would only show I was ok, because it is not at rest that I have the problem it is during exercise. He also set up my annual test, so within a month I should know what changed from last year. I'll keep you all posted, again thanks for all the very informative and helpful replies.
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Your appt seemed to have gone well. Sounds like you have a good doctor.
I think you may be right about his having a bad day but the one thing they need to understand clearly is that everyday for his COPD patients is a potential bad day. Happy to see that you are now scheduled for the tests, etc that will help you to understand more and also will help in defining what treatment you may need. Good luck and keep us up to date.
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Yes Denny, finding someone who will listen and pay attention is critical and can be very diffictult. I was diagnosed in 2008 with severe emphysema/COPD. I was able to maintain good oxygen levels until about a year ago but my pulse rate was always over 100. I complained to mp primary care doctor, pulmonologist and even ask for a referral to a heart specialist. It was like they had all practiced the same script. It's your medications. I still was not convinced. These last few months have been extremely difficult. Have a new pulmonologist. He had treated me for an infection on my CT exam 6 months ago when I finally made it through the 2 years medicare wait period. The next check up 3 months later revealed a different infection. This 3 month exam the lungs were clear but I could not walk across the room. All I could say is, It's My Heart, It's My Heart. I said I can't do a 6 minute walk with oxygen. That had never been a problem for me. Finally they listened. They did a MRI on my legs for blood clots, whatever for ? Legs are fine, lol. The next day they got me another oxygen supplier and put me on O2 24/7. I had never slept with O2 before. The next morning when I woke up and checked my oximeter my pulse rate had dropped like a rock from over 100 to 74. The next night my pulse rate went down to 64. Of course, as soon as I start moving around it shoots back up again but that was amazing to me. I've been able to walk more and feel like there is some. Hang on to your britches you brave souls we're all taking this ride together!
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Kyleesnan: I do not know much; but I have been checked for blot clots in legs several times. As our lung disease progresses it can involve our heart (it did it my case) and our entire cardio-vascular system. My cardiologist insists on checking my legs periodically; as PAD is another disease that occurs with COPD. I take medication for my heart; as I am in tachycardia most of the time----which led to my heart attack.
My understanding is that my lungs are so damaged that it puts strain on my heart; my veins and arteries in legs; and many other organs. If that were not enough, steroid use to breathe can cause osteoporosis and cataracts. I have both. Best wishes to all.
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