What is CHARGE Syndrome
CHARGE syndrome refers to a specific set of birth defects in children. CHARGE is an acronym for some of the most seen features in this syndrome.
CHARGE syndrome is sometimes ...
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Losing a child
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I just lost a child to CHARGE. He was only a week old. My husband and I are so sad and wonders what others in our situation probbly think "Why us?" Colin was so beautiful and so innocent. We did not even know what CHARGE was until the doctors told us. CHOP is supposed to be one of the best children's hospital in the world and they could not help Colin. You are not supposed to bury a child. I'm willing to get help from a support group but my husband is in denial. He doesn't want to spend time with me and our healthy 2 year old son. He spends all day by himself and I'm frustrated that he will never be back to the loving man I once knew. Does anyone have advise for me?
JeanneS Posted on 10/28/09, 03:10 pm |
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