What is CADASIL
CADASIL (cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy) is the most common form of hereditary stroke disorder, and is thought to be cau...
Join Now
|
My husband and Cadasil
|
Watch this |
| View More Posts Ignore |
We are from Sydney. My husband has cadasil, he hasnt been too bad and may only have an episode a couple of times a year. He is meant to be taking asprin every day but I know he doesnt. I keep on him to do it but I sound like a nag. Straight away when he starts feeling it come on he hits the panadeine forte and lays down for a few hours.
Nathan is only 30 and has been diagnosed with this for around 10 years now. He has a really good specialist in Sydney which he has an MRI and sees him every year but still it seems not many people know much about it. We also didnt know if cadasil for hereditary but reading in the community it seems to be. We were trying to find this out before having our son Liam. They wanted to do tests on me while I was pregnant but my husband didnt want them too. We were told there is a 50/50 chance. They had no idea if it would or not. I still dont know much about the condition, what to look out for, things I can do to help my husband and I want to understand it. My husband does not know that I am on here. He will stress about it if he thinks that I am so I just want to chat with other people either with it or supporting someone with it. Thanks. Posted on 08/14/07, 08:08 pm |
| 2 Replies | Add Your Reply |
| View More Posts Ignore |
hi, are also from sydney. Husband diagnosed last year. He is 44. We have 3 kids. His Mother died at 42. Would love to talk to you. 
|
|
|
|
||
| View More Posts Ignore |
I just found out about this website from a coworker whose daughter has had brain trauma. I, myself have CADASIL and think it is very helpful to talk to others with this disease. There sure dosn't seem to be alot out there about it! I hope that your you and your husband are doing well.
|
|
|
|
||
| Add Your Reply |
