Brain Injury Support Group

http://www.sjogrensworld.org/teppe...

this might help explain, I do have a brain injury, and I let them read this site. They just don't understand what we're going through.
I do know what you mean.
I hope this helps you, big hugs

Dugeb

Thanks!

may I ask what part of FL you are in? I'm moving to Panama City Beach tomorrow, to become a live in caregiver companion fo an elderly disabled gentleman. I am a TBI survivor, am on Facebook where there are a whole bunch of us networking and sharing our ordeals. I know FL has a really good Brain injury association and then there's second chances in Panama City. It is a day program for survivors, they host an annual spring festival at St. Andrews park to make the community more aware and understanding of survivor behaviors, impairments and hardships.

Sometimes I wonder if it is me, and all the yelling my now ex husband did at me in denying his TBI, was really me. But I check in with people that have known me for a long time and they tell me that I am the same person I was and by the way, who the he!! is that guy you were married to. But I need reassurance from time to time that it isn't me. He is so good at blaming everyone else for his problems that he refuses to acknowledge or have treatment for or even discuss. You are not alone. You are not the problem. Eventually people will see that.

Also, you WON'T get his family to see or help. That's their "baby", brother, sister, whatever. He is telling them exactly the opposite as you are. You can only work on your relationship with your daughter. Don't even bring up her dad or the TBI. Just you and her. That is her dad, no matter what. And she's going to love him unconditionally. You can't fault her for that. You know you are right, but you don't have to prove it to anyone. I have found my ex can't sustain relationships and his family is slowly finding out how serious the problem is. I begged for help while we were still married. Got ignored, poor Brad his wife is such a horrible person.... Now he is their problem. And you know what? Some of them even apologized to me.

Thank you for your comments! I continue to educate myself about my husband's injury even while heading to a Mediation Hearing today!! I love my husband and hope that one day he will let me help him... It is so comforting to know that I am not alone and so helpful to finally begin to understand his injury and thus his actions... I wish I knew sooner....I could have handled things differently..... I do know that things happen for a reason and that something good will come of this... I continue to try to be strong but I am sad and frustrated...

My husband had a brain injury in June due to a fall, we almost lost him three times. He had 2 large severe bleeds within his brain and fractured his skull. It is a very slow going in his healing, I brought him directly home from the hospital as I refused to place him in a nursing home. I am also told it will take a year or longer to know how he is going to be from his injury. He has great difficulty with his vision now and also his hearing, along with many other problems. He didn't know me for the first six weeks. That was very difficult and it was very slow getting him to understand many things. I truely feel he has came a long way since his fall, I have not left him once since I brought him home, managing fine getting him our and about in his wheel chair, now that winter is setting in it is going to be more difficult to do that. I can only add that it is through praying and looking to the Lord to guide me in caring for my husband that has gotten me through these last five months, just in the blink of an eye life changes. I have been working with him myself on his speech comprehension. I will be keeping you all in my prayers. I have learnt through many years past, never to give up and push on and to Claim God's Best to be.
I am new here and this is my first posting. I don't know how often I can get in as 24-7 caring for my husband keeps me busy and I really seldom get on the computer. I kinda feel God led me to do a search to be with others that have and are going through a difficult time like we are due to a brain injury.
DailyIn Prayer

Frontal lobe is devastating...often only those nearest and dearest see the real impact, as these folk are often the masters of disguise. Most people would not live with them 24/7 yet families are expected to. Dr Rodger LI Wood claims most of these people cannot keep up the pretext after 2 days yet he has seen some folk in an institution manage the disguise for up to 5 weeks, much like mental illness. How to convince families? You don't. Don't waste your energy. You are the victim, you are always the victim, never my brother, my father, denial is a great way of coping for people often see only what they want to see. Perhaps your husband could stay with family for a couple of weeks to give you a break?
I found cognitive therapy helped tremendously if you get the right therapist as did a neuropsychologist if they have consultations with both of you tegether. If mood disorder is an impairment which is a high probability then medication of Epilim or Tegretol can be effective to even out the troughs and vales....
I do not wnat to be pessimistic but I am also a realist...sometimes they are in the too hard basket and over time you realise that you matter. This does not happen over night and when it does hit you may feel guilty. Sometimes you just have to go on faith, faith that it will get better in time, better than what it is at the moment. Always remember that you matter. We often forget this. Look in the mirror and tell yourself this often. I repeat you matter. My love and support are with you for many of us know exactly what you are going through yet cannot give you THE ANSWER. Good Luck.