Brain Injury Support Group
Traumatic brain injury occurs when a sudden trauma causes brain damage. TBI can result from a closed head injury or a penetrating head injury. Symptoms of a TBI can be mild, moderate, or severe, depending on the extent of the damage to the brain. Outcome can be anything from complete recovery to permanent disability or death. A coma can also affect a child's brain.
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It's hard for me to make this a short story but is also hard to spit out all the details but I will try.
Back in 2004 I was a normal healthy 27 year old man that had never experienced memory or cognitive problems. I had never been depressed or suicidal or experienced any other psychological issues either. I did however have anger issues that got me into trouble in 2004. I was involved in an altercation which led to me being required to take anger management and as part of the anger management course I was required to have a psych eval. I went in for the psych eval and the lady at one point suggested that I might have adhd and she offered me a trial sample of strattera. Actually it was more like she insisted and kept pushing me to try it. She told me it was safe to just try even if I didn't have adhd. And if it didn't do anything for me I could just quit. She never warned me about side effects or withdrawal and never told me about having to taper off of it. And this was before any of the black box warnings had been issued for it. I took the three month trial sample home and tossed it in the closet and forgot about it. I had been laid off from my job so I enrolled in college. Passed my entrance exams with flying colors and started college that Fall. Several months in to college I was doing great. I had a 3.8 GPA was elected vice president of the Post Secondary Agricultural Association and was invited to join the Phi Beta Kappa Honor Society. I was awarded a special agricultural scholarship and was granted a payed internship with Wells Dairy as a lab technician. I moved on campus to be closer to school and while unpacking I came across that trial of strattera. I wasn't having any problems that led me to try it I just remembered the psychiatrist telling me adhd or not it was safe to just try. So I looked in to it a bit and decided to try it. While on it I experienced some panic attacks but didn't notice any benefit from it. So when I ran out I just quit. In less than a week of having quit I was having all sorts of physical side effects. Dizziness, gray out spells, panic attacks, insomnia, hyper sensitive senses........etc... Then I began having memory problems. I had always excelled at spelling and grammer and was also good with computers but I began struggling to spell simple words and remembering how to do tasks on the computer while doing homework. This went on for a couple months and then came the depression, anhedonia, and anxiety which got progressively worse. And then came the psychosis. By April of the following year I had became suicidal which was completely out of character for me and the memory\cognitive issues had gotten much worse. And I eventually attempted suicide and ended up in the psych hospital where they gave me seroquil, cymbalta and klonopin. All of which made the memory\cognitive problems worse and added to the psychosis and depression and created new psychological and physical symptoms as well. Longer story short I have been on at least twenty different psych meds since then and have struggled with all sorts of psychological and physical problems that never existed before ever taking psych meds. The worst of which is the severe memory, cognitive problems, and confusion to the point that I feel like I have a cross between brain damage, dementia, and amnesia. Equally as worse is the loss of ability to feel or experience emotion or anything at all like a normal human being. The only thing worse than being on the medication is trying to get off of it . I feel like i've lost 36 years worth of everything. All my knowledge, understanding skills, experience, insight, thoughts and feelings and connections and associations to everything have been massively wiped out and what remains is scrambled and confused and weak and insecure. I look around at things that I know had thoughts and feelings and knowledge connected to it and I may recognize the thing itself but everything or most everything connected to it is gone. I had 16 years worth of computer and electronic skills and now I struggle to do basic tasks on the computer. I worked carpentry and home maintenance for years and now I can't even take care of my own home. And the thought of going back to college and completing my degree is just a fantasy. I applied for disability as I can barely function and keep up with everyday life. But that has been denied three times and is on appeal. I absolutely can't get doctors or anyone to help because they keep claiming the memory loss and everything else all has to do with depression and anxiety but I know it doesn't. I try to explain to them that it's not depression and anxiety causing the memory and cognitive problems it's the memory loss and all the cognitive problems plus all the psychological and physical problems the medications have caused that is making me depressed and anxious. I ask them wouldn't you be depressed too if over the next several years you completely lost your ability to practice medicine because you've lost all the knowledge and skills to do so. Plus you lost all your knowledge and skills about and with everything. Wouldn't you be anxious too if you knew there is all this stuff that you are responsible for and things you need to do and need to know how to do but everything needed to do it is gone. I can't get them to listen and they completely tune me out and refuse to admit that the medications had anything to do with this. And I know for a fact that the medication is the sole culprit. It's no coincidence that I had absolutely none of these problems before psych meds and then suddenly after being on them and\or trying to get off of them all these problems began. And with each new medication I was on new problems popped up and the ones I had from previous meds was made worse. I'm at my wits end and don't know what to do or how to get any help. So I am turning to all of you for advice.
Back in 2004 I was a normal healthy 27 year old man that had never experienced memory or cognitive problems. I had never been depressed or suicidal or experienced any other psychological issues either. I did however have anger issues that got me into trouble in 2004. I was involved in an altercation which led to me being required to take anger management and as part of the anger management course I was required to have a psych eval. I went in for the psych eval and the lady at one point suggested that I might have adhd and she offered me a trial sample of strattera. Actually it was more like she insisted and kept pushing me to try it. She told me it was safe to just try even if I didn't have adhd. And if it didn't do anything for me I could just quit. She never warned me about side effects or withdrawal and never told me about having to taper off of it. And this was before any of the black box warnings had been issued for it. I took the three month trial sample home and tossed it in the closet and forgot about it. I had been laid off from my job so I enrolled in college. Passed my entrance exams with flying colors and started college that Fall. Several months in to college I was doing great. I had a 3.8 GPA was elected vice president of the Post Secondary Agricultural Association and was invited to join the Phi Beta Kappa Honor Society. I was awarded a special agricultural scholarship and was granted a payed internship with Wells Dairy as a lab technician. I moved on campus to be closer to school and while unpacking I came across that trial of strattera. I wasn't having any problems that led me to try it I just remembered the psychiatrist telling me adhd or not it was safe to just try. So I looked in to it a bit and decided to try it. While on it I experienced some panic attacks but didn't notice any benefit from it. So when I ran out I just quit. In less than a week of having quit I was having all sorts of physical side effects. Dizziness, gray out spells, panic attacks, insomnia, hyper sensitive senses........etc... Then I began having memory problems. I had always excelled at spelling and grammer and was also good with computers but I began struggling to spell simple words and remembering how to do tasks on the computer while doing homework. This went on for a couple months and then came the depression, anhedonia, and anxiety which got progressively worse. And then came the psychosis. By April of the following year I had became suicidal which was completely out of character for me and the memory\cognitive issues had gotten much worse. And I eventually attempted suicide and ended up in the psych hospital where they gave me seroquil, cymbalta and klonopin. All of which made the memory\cognitive problems worse and added to the psychosis and depression and created new psychological and physical symptoms as well. Longer story short I have been on at least twenty different psych meds since then and have struggled with all sorts of psychological and physical problems that never existed before ever taking psych meds. The worst of which is the severe memory, cognitive problems, and confusion to the point that I feel like I have a cross between brain damage, dementia, and amnesia. Equally as worse is the loss of ability to feel or experience emotion or anything at all like a normal human being. The only thing worse than being on the medication is trying to get off of it . I feel like i've lost 36 years worth of everything. All my knowledge, understanding skills, experience, insight, thoughts and feelings and connections and associations to everything have been massively wiped out and what remains is scrambled and confused and weak and insecure. I look around at things that I know had thoughts and feelings and knowledge connected to it and I may recognize the thing itself but everything or most everything connected to it is gone. I had 16 years worth of computer and electronic skills and now I struggle to do basic tasks on the computer. I worked carpentry and home maintenance for years and now I can't even take care of my own home. And the thought of going back to college and completing my degree is just a fantasy. I applied for disability as I can barely function and keep up with everyday life. But that has been denied three times and is on appeal. I absolutely can't get doctors or anyone to help because they keep claiming the memory loss and everything else all has to do with depression and anxiety but I know it doesn't. I try to explain to them that it's not depression and anxiety causing the memory and cognitive problems it's the memory loss and all the cognitive problems plus all the psychological and physical problems the medications have caused that is making me depressed and anxious. I ask them wouldn't you be depressed too if over the next several years you completely lost your ability to practice medicine because you've lost all the knowledge and skills to do so. Plus you lost all your knowledge and skills about and with everything. Wouldn't you be anxious too if you knew there is all this stuff that you are responsible for and things you need to do and need to know how to do but everything needed to do it is gone. I can't get them to listen and they completely tune me out and refuse to admit that the medications had anything to do with this. And I know for a fact that the medication is the sole culprit. It's no coincidence that I had absolutely none of these problems before psych meds and then suddenly after being on them and\or trying to get off of them all these problems began. And with each new medication I was on new problems popped up and the ones I had from previous meds was made worse. I'm at my wits end and don't know what to do or how to get any help. So I am turning to all of you for advice.
Finding this group and reading about TBI/ABI, everyone's experiences, when I taught myself how to use a tablet, has been huge. I also called the Brain Injury Assoc in my state and they sent out a packet of both info and names of BI specialsts....eye rehab specialists too (NORA docs)
I am very med sensitive...NO SSRI's...I had what my psychiatrist thinks is Serotonin Syndrome...really scary, and I have paradoxical reactions, so I take one low dose antiseizure med....and it has to be the name brand.
Something happened to you...there was the anger issue first...then the medication...did you play any sports, have any blows to the head at any time in your life, any viruses?
Keep trying, don't give up, someone is going to believe you, it took an eye doc who specialized in brain injury to believe me...I had been hospitalzed for depression, but I knew something else was going on...It was...trust your gut instincts....check out a site brainline.org....read the past threads here..you are in the right place for understanding...it can be a nightmare...this is such a hard journey..vent...ask questions....we care about you and we share to help each other!! Blessings
No, no, the anger issues had nothing to do with any past injury or anything like that. I was shy and awkward and introverted growing up so I got picked on and began lashing out. I also grew up in a broken home and any time my parents were together it was constant bickering and fighting. So that is where the anger issues came from and that followed me in to adulthood. The anger issues landed me in anger management with a requirement to see a psychiatrist for an eval. And the quack said she thought I 'might' have adhd and she kept insisting I just try this trial sample of strattera. She might as well have been a drug dealer trying to push her goods. And well the rest is explained in the original post, even though that's the short story and a real understatement of what I really went thru after taking meds. So no there was nothing else in my past that caused this, I never had memory\cognitive problems, depression, anxiety, suicidal thoughts or anything like that until that first experience with psych meds and every other experience with them afterwards. It was the psych meds that did this to me plain and simple. But no one in the mainstream medical community is going to admit that these medications cause brain damage and all sorts of other horrible physical and mental damage and none of them are going to try to do anything to figure out what these meds have done to me or anything to try to correct it. Because they make so much more money promoting and prescribing and defending these meds. And more money keeping people sick and convincing people they 'NEED' these medications. That's why doctors\psychiatrist's keep inventing new mental illnesses and the pharmaceutical companies keeping developing meds for these 'new mental illnesses. And it's why the keep trying to get these meds approved for things they should NEVER be approved for...like trying to give people 400mg of seroquil as sleeping aid or cymmbalta for arthritis. It's all about the money. So after trying to get help for over three years and hearing all of them try to tell me 'ohhh it's just depression and anxiety causing your memory loss....you NEED to get back on the meds" Bulls**t I'm depressed BECAUSE of all the memory losss and all the thinking problems. I'm depressed because I can't think to do all the things I need to do and all the things I'd like to do and all the things I was skilled at before. I'm a retard now and I know I'm never going to get any help with this and things are just going to keep getting worse. I've lost all hope in and respect for most all of the medical community. I'm screwed. I'm so damn slow and stupid and unable to function now that I just don't want to live anymore.
Please don't give up!! I understand about losing alot...my marriage gone....career gone....it is so very hard and I feel for you...but don't give up hope. Please try reading past threads here...you are not alone....we try to help each other, because we live with TBI/ABI...and no one can understand until they are walking in our shoes. Doctors learn from our experiences.
My brain was poisoned...chronic low level exposure to carbon monoxide gas..faulty gas stove...I thought I was losing my mind....seizure like episodes...no one believed me for years! The frustration was overwhelming and I can't even go into much detail...years ago and details too painful. Just know we care about you.
I pray you find that doctor who will believe you. God Bless!
I really hope that you see this reply and are still surviving. I am very sorry that you are going through this and am witnessing a situation very similar to yours.
In the case of the person I know, the ADHD med was methylphenidate and he only took it for less than a week. It has been a frustrating, tragic ordeal trying to get help from medical professionals this past year.
After many doctors proclaiming the impossibility of serious harm from this common medication (in spite of black box warnings to the contrary), he has been diagnosed with a brain injury by one psychiatrist.
There is so much to the story, I don't know how to summarize at the moment. Anyone going through something similar, please reply or contact me for more information.
Now, 7 years later he's about to graduate from High School. The Tourette's symptoms are is still there, but just a part of him, quite manageable without medication. That is where they should start. the kickbacks and other incentives from big pharma are causing so much irreparable harm, it ought to be illegal.
I wish you all the luck in the world and hope you find yourself improving.
HOPE Helping Other Possibilities Emerge is your mantra now, after all maybe hope is all that you have to go on for as we all know it can be a damned lonely, hard rocky road. Chin up. Don't ever give up.
Have you heard or read about a new molecular therapy that uses targeted peptides and proteins to restore cellular function?
If you Google "Peptide treatment" or the company named "Regenerative Cellular Therapy", you can get a lot of valuable information.