Brain Injury Support Group

This is happening to us too. I keep waiting for my hubby to get to the point where he can get out more so we can reconnect with his friends and family.

I don't know what to tell you except that I understand.

Well I can tell you that all my good friends (yeah right) are gone.

i know what you mean. it was like while we were at the hospital people were there all the time including his family.... then as soon as we came home no one comes and sees him or calls. excpet his step mom which has helped me out a lot...but ,, i like you understand that it is something that we have to deal with everyday and they need to just get over it. i have finally came to the conclusion that we dont need anyone else... and the Lord will put people in our lives that will accept our family the way it is....

I have lost all my friends. Guess I never had any true ones. That's what hurts. ~heather

You know, as unusual as it seems, that happens to some people. One of my Mom's best friends, lost her 18 year old daughter in a car accident and so many people have deserted her. It really doesn't make sense when you think about it. This is how I see it: When something really traumatic happens to someone, sometimes the people closest to them don't know how to act, or what to say. This can often lead to them just not saying anything, or not coming around. Rest assured that your family and/or friends just don't know how to act or what to say. That is the reason why they don't try to contact you, it's not you, it's them. I know that doesn't make it any easier, but understanding sure helps sometimes. Not many of my friends call me that often anymore. Good luck and God Bless

Finding people to connect with, to share how you really feel, is what makes this site so wonderful. Most of my friends are gone. My phone only rings if it is mom or dad checking on me, an occasional credit card company with a " Super Dooper Offer" or the doctor's office that I go to about 3 times a month. Just recently, I was terminated from my job. My injury is Workers Comp and it took about 3 years. Yes, TBI is lonely.

But we are here for each other.

Thankfully my brain injury was much less severe than this and I do now seem to have made a pretty good recovery. When I was told what had happened they sent me home and it was as if I just fell off the planet or something. I am getting better thankfully but have lived in almost total isolation for the last year. Its been really hard but I do feel a much stronger better person for it, knowing I survived all this and I did it on my own. Made me realise how little I really do need those people I thought were my friends. Maybe see if there are support groups in your area or something. In the end you will make better, stronger friendships because of this. Just takes time.

My daughter suffered a severe tbi a few years ago. At first she had overwhelming support from friends. I think she set the hospital record for most visitors. Then when she came home the support continued for a few months. When her friends realized she is not the same they disappeared. What a shame, because her friends could really make a huge difference in her recovery. What really hurts the most is that some of her friends were with her when she was injured.

I think this is pretty common. When my son had his wreck, a large group of his friends came to the hospital when they thought he was going to die. After that first 24-48 hour period (when we were told he "might" live but would never "be in there" he was in a coma for nearly 2 months) they started dropping off like flies, with the exception of a couple of them. That same couple of friends are still his friends 10 months later, the others still do not seek him out or even call to see how he is doing.

I know exactly what you mean. My husband experienced a TBI in June 2008 and now we are in the hospital again at the same time of year. I feel the same way.

I'm looking for support from a spouse who can relate to my situation. Would you be interested in sharing experiences, etc.?

We need to be able to find people we can talk to who can understanding our situation