Brain / CNS Tumors Support Group

Biopsy is cancelled for Friday the consultant cant fit him in. Hopefully it will be done early next week.

I hate this for the two of you. I know the waiting is awful. Hopefully it will be treatable; which most are. Not cureable but treatable. Hope is key here. You and your spouse will be in my thoughts and prayers.

Thanks we are keeping our fingers crossed for a good result.

Hi, I'm sorry to hear this. I had a brain tumor and it had to be removed 3x. It kept growing back. There was churches all over praying then one day I went in for my MRI and just like that it was gone!!! The prower of prayer!! I will keep you in my prayers.

Jimmy's was inoperable but he underwent 10 whole brain radiation treatments and it shrunk almost 70% in 3 months. He's still going through chemo so it could get better. Hope is all any of us have. Hang in there, okay?

Thanks, Hubby gets the biopsy results on Tuesday and then some sort of Treatment will start.

Hope Jimmy continues to improve.

I have had a biopesy for my left frontal lobe Ogliodendroglioma and it was found out to be #2. It was not really that scarey due t the fact that they gave me a IV and said we had to take another MRI and next thing i know i woke up in the recovery room. I had a bandage on my head and 4 little holes where they had to screw in the HALO to guide the needle into. I agree the worse part is the waiting game. I am here for you and your hubby if you need or want to talk if you want i can give you my email just message me :) Also we could also snail mail i am stationed in Germany. I hope to hear from you.

Thank you Daredude, well the results came back and ............. there were none. The mapping was 1 cm out and instead of tumour they took out brain and caused a bleed. He ended up staying in hospital for 3 days in total, where he was ok apart from having loads of seizures. The nest day he had an absolutly dreadful headache and spent the whole week sleeping. He was awake for less than 4 hours aday!! The headache is still there but no where near as bad. But he is having a few problems with memory and his hearing. Hopefully these things will improve. It has taken him 2 weeks to recover from the Biopsy and now has to go through it all again. He has another MRI on Friday without headphones as the consultant thinks these destorted his ears and the Mapping.

Fingers crossed that the biopsy is soon.

Well opp 2 has happened and amazingly the neurosurgon has managed to debulk alot of the tumour. We get a grade and then treatment will start. Fingers crossed time again.

We got a grade and its what we were hopeing for, a grade 2 Ogliodendroglioma.

Hubby isnt having any treatment the consultant wants to hold a watching brief.

Hubby hasnt been to well and ended up in hospital with suspected meningitus (sp) thankfully it wasnt that just a bad infection which was masked but the steroids.

He hopes to go back to work in September so we are just taking each day as it comes.