Advertisement


Do you suffer from chronic pain?
Learn how straightening up can ease your pain
Chronic pain management tips


More DailyStrength
Health Event Calendar
See what's new on the site
Step-by-step Tutorials
How to use DailyStrength
We're on Facebook
Check out our page
Follow us on Twitter
Read our tweets
Get Cool DS Stuff
Shirts, Hats, Baby Wear
Home DiscussionsHealth BlogsExpert AnswersTreatmentsMembersGoalsGroups

General Discussions   DailyStrength.org - glioma

Back to Discussion List
Discussion:
glioma
 Watch this 
View More Posts Ignore
My neurologist, who first thought and treated for MS, had some special tests done and discussed them with his buddies. They are pretty sure my brainstem lesion is a glioma.

I'm to see a neurosurgeon next week to see if there is a way to do some type of biopsy without sticking a needle in it. Taking a piece of tissue would cause something to no longer work as the area in question is where our cranial nerves originate that control sight, hearing, swallowing breathing and other stuff I'd like to keep working.

Then the following week I'm to see a radiation-oncologist for gamma knife.

When a doc says brain tumor, cancer, and inoperable all in the same breath, it kind of lets the air out of you.
Posted on 01/11/12, 11:09 pm
Hug EasyM   Send to a Friend     Share This
4 Replies Add Your Reply
Reminder: This is a support group for Brain / CNS Tumors. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts Ignore
Reply #1 - 04/13/12  8:43am
" Good luck with the treatment anyway and hope it works. "
View More Posts Ignore
Reply #2 - 05/23/12  5:10pm
" Speaking as one who has heard the three together...and is still here after 4 years...

Big Deep
Breath...

Then start enjoying whatever is left of your time here :)

(((hugs)))

Carla "
View More Posts Ignore
Reply #3 - 05/28/12  8:19pm
" Keep your faith strong. There is always HOPE. Enjoy life, your family and nothing is more important than that. Prayers coming your way. "
View More Posts Ignore
Reply #4 - 10/22/12  10:38am
" My husband recently passed away from glioblastoma multiforme, so I certainly hope that your tumor is not a glioma. The good news is that when you have an inoperable primary brain tumor your diagnosis is usually on the compassionate allownace list for social security dissability benefits, and your case is fast tracked. So the first thing I would do is apply for SSDI benefits. Have hope, and live life to the fullest. I don't know where you are located, but if you have the option of going to either the Mayo Clinic, Duke University, or The Huntsman Cancer Institute for treatment I'd do it. My husband saw a neuro oncologyst at the Huntsman, and we wouldn't have done anything differant with his treatment if we had gone to Duke. Talk to as many neuro oncologyst as possible about treatment options, and never, never give up hope! "
Report Abuse

Add Your Reply
Advertisement


More From Around the Web