What is Brain CNS Tumors
A brain tumor is any intracranial tumor created by abnormal and uncontrolled cell division, normally either found in the brain itself (neurons, glial cells (astrocytes, oligodendro...
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Coping with an ill father
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I am 21 year old daughter to a father who has been fighting this beast for 6 years! My father had discovered he had a brain tumor when he was just 35 years old, he has had surgery, chemo, radiation, you name it he has probably tried it. The last biopsy we had showed that it was a grade 3. The tumor has continued to grow affecting his motor skills, movement on his right side, he is tired most of the day. I live 10 hours away from him, finishing my final semester of undergraduate college and saw him about a month ago. He was fine, walking by himself talking fine. I just went back home 2 days ago and I was heart broken to see the drastic change that had occured. He couldn't move by himself, when he spoke he sounded as though he was drunk and his vision was blurred. He is currently undergoing chemotherapy, but the increased symptons caused some concern. Off to Boston to get an MRI to see what the deal was. I just got word this is tumor is growing into his brain stem. I am so scared to lose such a big part of my life. I never know the words to say to make things ok, to make him smile. It's so hard to see him suffer! I know he is slowly giving up his fight, but he can't stop fighting now, he can't, he is so young!!! I am getting married in 4 months, at a young age, and I am so scared that my first love, my dad, won't make it. Does anyone have any suggestions on how to keep positive myself, but also to pass that energy to him?! I am trying to juggle so much right now, and this by far is the most overbearing, i wish I was a doctor so that I could help him!!!!!!!!!!!! Any feedback is greatly appreciated!!!! I want to do all that I can to keep him going, but its hard when I can't stay focused and positive myself!!!!! :(
Posted on 03/30/09, 04:03 pm |
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For you Kayluh a big hug because this must be so hard for you seeing a love one suffer and feeling of helplessness but I guess just go up to your dad put your hand on his and say I love you so much and keep fighting and with a smile on your face I know your heart is breaking but you look at him and say we do this together Jokeyx 
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My father had a brain tumor as well.and died at the age of 44. His effected his left arm and fine motor skills. He wouldnt let that stop him in life. right before his third surgery his left side of his face looked like he had a stroke. He had slured speach and was having a hard time seeing out of his left eye thats when the doctors discovered he needed to have another surgery. after his surgery things were not getting better because the cancer had turned into liquid and was spreading fast. he went from walking to where my husband and I moved back in with my parents to help with my dad because he could no longer walk or move his legs he slowly became paralized. on Easter will be the one mo. anniver. of his death. my advice to you is to try to spend every sec. that you can with him. video tape EVERYTHING!!!! get family pic. taken again. I found in my area many photographers who are on call 24-7 and will go anywhere within the area to take free pics of a terminally ill patient and their family. we had this done 2 times and they turned out wonderful. keep your head up and know that he loves you even when it gets to the point where he cant talk anymore. try to do anythng possible that would make him happy. my dad loved playing drums and listening to music so we had family rock band nights where we would video tape us all singing and playing pretend instruments. knowing that whatever i did to make him happy made me happy. and keeping that focus on him would really help me. I too am in school I talked to my proff. and told them my sittuation they told me that I didnt need to show up for class and that i could turn in the work when i had time. hope this could help you in some way and my God be with you and your family.
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