What is Bone Cancer
Bone tumor can be used for both benign and malignant abnormal growths found in bone, but is most commonly used for primary tumors of bone, such as osteosarcoma (or osteoma). It is ...
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I am a 19 year old girl from the Chicagoland area. A little over two months ago, doctors found that I had a Giant Cell Bone tumor that had eaten away half of my C4 vertebra and was dangerously close to my spinal cord. I had been having pain and nerve problems for several months, but the doctors thought that it was a pinched nerve and that it would get better with time. I finally went to the ER and they did an MRI which finally found the tumor. At first they thought it was cancer and that I would be lucky to see 21, but after the surgery they found out it was benign. Along with taking out the tumor, the doc fused 4 of my vertebra from C2 -C5. Today I am struggling through physical therapy, still am on narcotics, have severe nerve pain, have a deep burning itch deep inside my neck that I can't relieve, and had to take tome off of college. I want to know that there are other's out there you have gone through similar experiences as me or know someone who has gone through something like this so I know that I am not alone. Nobody seems to understand what it is like to deal with nerve problems or not being able to do a lot of things again or to live in fear that the tumor could come back. However, I'm not sure if I am in the right place. I am trying my best, but I don't want to walk this path alone.
Kel Posted on 04/26/08, 12:04 am |
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Kel,
Unfortunately not many people respond to this particular group...I had bone cancer and had my left leg amputated. I know what nerve pain is. Mine did get better with time...It's been a year and I still have some pain but it is more annoying than painful and lately I itch where there is no leg. I also live near Chicago and might be able to help you find support groups, a peer or more information...Have you asked your Dr. if he knows of anyone in a similar situation? Or if he knows of a group or website that could possibly help you? Someone started a group on Daily strength for nerve pain...I'll try to find it for you.. Feel free to send me a message and I will see if I can find you some more information. Lorri 
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I gound the group on Daily Strength that deals with nerve pain...
http://dailystrength.org/groups/ne...
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Hi Lorri,
Thank you sooooo much for your response! I can't tell you how much I appreciate it. No, I have not talked to the doctor yet about any support groups....At my next appointment I will look into that. The nerve damage group is exactly what I need - it is such a comfort to know that there are others out there who know exactly what I am going through. Thank you so much again!!! ~Kel
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Hi, I see you posted this a while ago so I hope you are doing better by now. You aren't alone, even though it may feel like it. I am a 19 year old college student and just found out I have chondrosarcoma. I have other chronic pain and for nerve pain I've found Lyrica works best. I hope you are doing better!
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I have giant cell tumors too, but in a different place. I understand the pain you feel. These tumors are unique really, in they act a lot like what malignant tumors do. They can grow rapidly, and invade areas of the body causing severe pain, the only true difference is they don't spread out to any other area and are not malignant. I have been dealing with my tumors for 13 years and I am now in my 3rd re-occurrence. I am now facing treatment that I have never dealt with before and I don't even know where I fit in but, I do know this; these tumors won't beat me. They won't beat you, stay strong in heart & spirit. If you ever need a fellow giant cell tumor buddy to talk to I am here.
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