What is Blindness Visual Impairment
Blindness is the condition of lacking visual perception due to physiological or psychological factors. Various scales have been developed to describe the extent of vision loss and ...
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I've been on DS for awhile and never really posted my own topic before. These past 3 weeks have been absolute hell though. I feel as though I need talking down from the ledge.
I lost vision in my left eye when I was 14. Therefore maintaining vision in my right eye despite constant struggles with my right eye due to uveitis, cataracts, iritis, iris bombae, elschnigs pearls, snickey eye, etc... 2005 my doctor put me on Cellcept and he also performed 2 surgeries. My vision in my right eye was pretty great corrected and the lack of vision in my left eye didn't bother me that much. Then 3 weeks ago I woke up and it was like someone turned a fog machine on in the room. I went in saw a doctor who told me that after 3 years my inflammation in my eye had skyrocketed severaly decreasing my vision. He put me on Cyclogel and Predforte. I took this drops religiously but the inflammation would just not go away and my vision just kept getting worse. Finally I went and saw a specialist Thursday. He said my inflammation was out of control high and on top of that my iris had almost completely suctioned itself to my lens preventing fluid from traveling from the back of my eye to the front. If the lens completely suctions itself to my lens my pressure will skyrocket and my optic nerve will be destroyed. I left there scared to death but with a game plan. Then Saturday morning I woke up seeing stars. The kind you see after someone takes a picture of you and the flash is bright - what you see right afterwards. But I see that all the time. I can barely read anything up close. I called the dr. and he thinks my retina may be swelling or there are inflammatory deposits stuck to my lens. I go back on Thursday to see him. I am so scared, I'm angry, I'm depressed. I don't know what to do anymore. I've been strong and tough and fighting for almost my whole life and to be honest I'm just done. Everyone says be positive...but how can you when you're demise is looming right around the corner? Does anyone else feel this way? Posted on 08/30/09, 06:08 pm |
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Hi Lindsay,
I don't have nearly the same vision problems as you, so maybe I don't have the right to respond here? I am very sorry you are going through this. Every time I go to another stage of deterioration I get scared, angry, and depressed. I know what you mean about being tired of people saying "stay positive", they just don't know what else to say. My thoughts and prayers are with you. Mike ox 
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It is ok to be angry and upset. It is good you vented your feeling here. That is what we are here for. We want to hear from you even if you are up set. I am not going to slap you and tell you to snap out of it. It is ok It will take time . I can't say that I have been in you shoes But I do have a pair very simular. One of the things you need right now are people who undersstand. And we do understand.. I know it is hard to be strong . We are here for you at times like these. We will help hold you up. Just think of us holding your hand through all these hard times . Just keep holding our hands. Come back often and vent to us. Love to you Ann
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http://www.youtube.com/watch?v=Hi8...
Hope this song will help you. There is a link to clik on This song is to give you that exta boost you need right now.
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My heart goes out to you, and you have every right to feel angry and concerned. Don't let people tell you how to feel - it's not them going through this. I know. I have RP (early stages) and was trained early on with seeing eye cane (just in case) for the future. I'm scolded regularly by a friend for not practicing with it (even though I don't need it) - and for not taking fish oil / vitamins. (I'm afraid of side effects...and it's my health.)
I know it sounds childish but we have to be the judge of our health. You're experiencing a sight change that is frightening, and the "think positive" attitude is good in theory - but you have every right to feel scared. You have friends and support here - those who understand the difficulties. Don't let anyone tell you how to feel. Keep us posted please on what's happening.
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Hi Lindsay,
Get mad, get flustrated, cry etc...Just don't give up...I have 5 bad disc in my back, diabetic, high blood pressure and though surly nothing else could go wrong...yeah right..got a staff infection on my neck, hospital had to drain it and the pain caused me to stroke out, matter of fact had three back to back..woke up four days later in the hospital and couldn't talk and everything was blurry..well recovered from the strokes, thank God, but now I can see only thru a thick, thick fog, and can barely make out any image...three months later had a heart attack... As bad as things are they can get a whole lot worse so don't give up...I know the fear of waking up and not being able to speak or see..I do understand where you're coming from, but please don't give up God Bless Tammy
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Hi Lindsay! I'm so sorry to be just now reading this post! You must be so distressed and frustrated and scared! I feel your pain. I have had chronic uveitis/iritis for about 9 years now and was diagnosed with RP last fall. The prognosis is blindness and they say the two diseases aren't related (how could I be so lucky?!). My point is, my whole world has been turned upside down since then . We fight to keep the uveitis under control and get cataracts from the steroid drops! Having your iris stuck is something that they should be treating with dialation drops (forget the name and can't see well enough to read the label this morning). If you aren't using them, you should be able to get some easily from your dr. I have the same problem (not saying it's as bad..could be)and the drops make my eyes even more sensitive but they do make a difference. They have put me on a much stronger type than the average dosage. I'm curious to know how you made out when you saw the dr. this time?? Any more info?
I get the anger and distress. Some mornings (like today) I wake up just not seeing all day. Scares the crap out of me every time. Please just hang on. I know it's exhausting emotionally and physically. Do you have trusted friends and/or family to lean on? I hope you find some strength to continue the fight. You look like a beautiful person in your picture! You write like a very bright and capable woman. If I can help you in any way, please don't hesitate to send me a message or email. You will be on my mind.
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KINDA MAKES ME THINK , OF THE RED LIGHT CAMERAS ,
BUT TRY TO DO LESS MEDS , IF THE DROPS TASTE LIKE RED , ITS TIME YOU STOP , AND READ WHAT I SAID .
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Hi Lindsay,
I'm very sorry to hear of your plight. I understand what you are going through. I have had no functional vision, just light perception, in my left eye my entire life. I've relied on my right eye, which also has gone through large changes in eyesight. Right before my senior year in high school, the IOP in my right eye crashed to zero. I have glaucoma so usually the opposite, high IOP, is the concern. My cornea was already degenerating in that eye. After about two weeks of being on steroids, my IOP came back, but I had suffered significant nerve damage and my cornea was worse. It was horrible. I was scared, angry, depressed. I know its not easy. But there are people out there who do care. Please take care and post here when you need to. Dave
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