What is Blindness Visual Impairment
Blindness is the condition of lacking visual perception due to physiological or psychological factors. Various scales have been developed to describe the extent of vision loss and ...
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Having a Family
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I am visually impaired and my boyfriend is blind. We would like to have a family after we are married. What are the challenges that you face when you have a family and are disabled like us? We already know that we probably can only handle one child visually and probably need to hire a nanny or someone for at least a short term basis.
Posted on 08/18/09, 08:08 am |
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I THKN ITS WONDERFUL U HAVE FOUND THAT SPECIAL SOMEONE U R READY 2 HAVE A FAM W/. AND, NO MATTER THE DISABILITY, EVRY PERSON DESERVES 2 HAVE A FAMILY. BUT B4 U DO MAY I OFFER SOME ADVICE. I AM LEGALLY BLIND. I DON NOT DRIVE AND I AM ON DISABILITY FOR MY EYES. I HAVE AN 7 YR OLD SON WHO ALSO HAS BEEN DIAGNOSED W/ THE SAME RP I HAVE. SO IM SPEAKING FROM EXPERIENCE.
I SUGGEST SETTLING DOWN IN A CITY WHERE THNGS R EASILY ACCESIBLE. SCHOOLS, DOCTORS, GROCERIES. BCUZ W/ KIDS U HAVE 2 B ABLE 2 GET 2 THESE PLACES IN RECORD TIME SOMETIMES. ALSO, MAKE SURE U HAVE GOOD INSURANCE IN PLACE JUST IN CASE UR CHILD IS BORN W/ A DISABILITY THEMSELVES. HOPE I HAVE HELPED SOME. I COULD GO ON AND ON SO IF U NEED ANYTHNG ELSE, FEEL FREE 2 ASK. 
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Thank you for responding to my posting. I also have RP. I have never been able to drive and I grew up in a rural area where there was no public transportation at all (for the sighted or disabled). In May, I moved to a small city outside of Baltimore where there is public transportation. There are also plenty of sidewalks. We are leaning toward adoption because of not wanting to risk having a baby who is disabled. We also think that if we adopt an older child, that we would be able to handle his or her needs better. I have lots of experience with babies and children but my boyfriend doesn't have any experience. I have a majority of my frontal sight. It is my peripheral that is missing. My boyfriend only has a very small amount of peripheral sight. He lost a majority of his sight when he was 20. I have been missing my peripheral all of my life. I know that we will know what to do when the time is right.
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I have RP as well as did my grandmother and my mother. My grandmother was blind most of her life and raised 11 children, out of her 11 children 1 got the disorder. My mother didn't develop it until she was in her 50's and I was in my late 30's when my developed.
It is always difficult to know if you will pass a genetic disorder on to your children. I believe it would be best to speak to your eye doctor or if possible a genetist. After I was diagnosed I kept questioning my son, who is now 19 years old, about his vision. I check to see if he can see periphially and ask him about his night vision. So far so good. Good luck with your new life and I wish you the best.
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