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hi all im new here..i had no clue there was a support group til i stubbled upon it but its pretty awesome. I have glaucoma an have been visually impaired my entire life..had so many surgerys since birth til adult hood i lost count, retinal detachment..etc. I have no vision in my left eye an a little in the right eye. very frustrating because im ery dependent on others. i do not drive, i do not an will not go anywhere alone. I hate the dark or if i loose my glaesses i cry...yes i cry because i have a fear of being in the dark permanently someday. its very annoying when ppl say jokes fam etc altough jokes to others may hurt you on the inside. im an outcast/ loner because no one like a co dependent person. im also in the depression an loneliness supprt group because i suffer from bothe those an other things....look forward to chatting with others who are in my shoes rather than others with no understanding or compassion for what i/we go through.
Posted on 04/11/12, 03:20 am
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Reply #1 - 04/11/12  8:13am
" Hi,
Reading your first few lines sounds like y life story as well. I have been blind y entire life due to being born premature. I too have glaucoma and have had detached retinas, cateracts etc. i can only see out ones eye and do not drive either.
Here's the beautiful part, I dont know any other way, meaning, my blindness has brought me many strengths, experiences and trials, that I would have never otherwise had. I believe my trials have shaped me into who I am today, a very independent, as mush as I can be, wise, strong, and determined woman. Thos wasn't always how I felt of myself. It is support groups such as these and inspiration that u can pass on to others that gives u value and purpose. We are not dead. Our blindness doesn't define us, or at leaast it doesn't have to. Times and situations are tuff, like raising a 4yr old and not being able to get out of the house. Not being able to get to an apt. But rather u have to find the smaller blesings in life. I didn't always like ppl. In fact I hated most, selfish, self centered ppl. But what I realized is their are those few diamonds in the ruff, who want to help. Cheerish those. Me, i love the dark, I find it peaceful, caling, challenging and mysterious.
Glad that u r here. Look forward to hearing more from u. "
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Reply #2 - 04/11/12  10:04am
" I was born premature as well not even barly 2 ounces sames as my twin. ive never been independent but im slowly learning how to be. i understand all about raisig little ones i have 4 boys ages 8,7,5, an 3. I love ppl but im not sure ppl love me =(. thank you for your reply an kind words dear "
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Reply #3 - 04/11/12  11:31am
" Well see, u can help me by advising me how u got thru raising 4 children. Oh my. I am afraid of having any more. I sometimes worry I have screwed this one up already. I am angry alot and with that comes yelling. Which I feel is the only way I a heard. I know that is not realistic, but as a result he is loud too. He has no quiet button and he only operates in two speeds: sleep and GO. I, like u, am learning daily. That is the journey of life never stop, growing. Somethings are not so easy to walk thru, others are a breeze. We r here to help each other. "
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Reply #4 - 04/11/12  11:35am
" One more thing, ppl can be very gaurded in their own ways. Ppl shy way from things they don't understand things that nake them uncomfortable. it is hard for us to explain our disability. It is not something others can get concretely. Sometimes our fears come thru and they want to help but don't know how. We take that all as though they don't like us, when really they just don't understand. Until we can open our hearts to educate and be free with who we are, then u will find more peace and grace fro others. "
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Reply #5 - 04/12/12  12:58am
" haha raising my 4 boys is hard work..an like yourss mine are loud all day everyday..i do yell ALOT because it is only way to be heard over the 4 an to make them stop be quiet an look at me crazy then i can speak normal lol. its def a task but i have lots of help. and when i need breaks i just send them to there nana our aunt or uncles homes whoever available for a few days an want them lol. i do not turn dow any help lol "

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