A Sense of Unity
I went to an autism rally at the statehouse in Columbus today. There were a couple of hundred people there, including a …
Autism is classified as a neurodevelopmental disorder which manifests itself in markedly abnormal social interaction, communication ability, patterns of interests, and patterns of ...

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Bad IEP meeting
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Yesterday we had the meeting to get the results for our daughter's IEP evaluation and they are saying that they witness no autism in her or ODD behaviors. They say the only area she needs help is in some speech therapy. And even that is BS. What they say is her problem is much worse. They totally contradicted themselves. They say they see no autistic behavior but when we said about her rocking and flipping, pressing her face, walking on side of feet, etc. they are "oh we've seen that." HOW do we get help??? Now that we have the IEP that basically says she is NOT autistic (even tho she has been diagnosed by a specialist) the regional center probably won't help us. They base their support on the school IEP mostly. HEr behavior at home seems to be totally different. When at home she is defiant, sassy, won't listen at times. IT is difficult to get her to even get dressed in the morning. She cries about everything and goes into meltdowns or fits over the smallest thing. Another thing that was contradictory was that they say there is no problem but then her am and afternoon teachers say they see a major change in her in afternoon in behvior and could we possibly give her meds in afternoon. OK. There is no problem but they want us to medicate her more! What do we do to get help? We are transferring her to another school closer to home because we moved and are hoping to get better help there. Our rights say that we can request another independent eval at school cost if we do not agree, but it also says they can deny the request. The psychologist keeps saying autism has to be "pervasive" in all areas, not just at home, like we are idiots. I am ready to throw my arms up in the air and scream. Actually I did do that last week one day. lol. Any help? Any friends out thete? I need support. I am quickly losing all peace in my life.
Kim Posted on 10/28/09, 12:10 pm |
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It is 10 days... you have the right to hold the IEP and not sign it.. ARC offers free advocacy in NJ... check with them and tell them you have no money and need help. If they can't help you... and I would be surprised then they should be able to tell you where to look. Good luck. Denise
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Now I saw Amber's therapist yesterday and she said that she talked with the psychologist from the school about the IEP and she agrees that she does not think Amber is autistic. Geez... what am I supposed to do?
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the only thing i can suggest is get a second opinion. do some research and see where the closest autism expert is. you may have to travel a little bit. we have an appointment at the kelly oleary center for asd's in february. that is where he was originally diagnosed. you also will encounter a waiting list. if that happens, call and see if they have a cancellation list . whatever you do, don't stop trying. it's going to take a lot of leg work on your part. see if there is a local or regional autism group and see if they have an online site. a lot of them do and leave messages.
what it boils down to is a lot of research and leg work on your part to find the answers but i know you can do it.
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By federal law, you are entitled to an IEE (Independant Educational Evaluation) -request it from your school district in writing. You have the right to decide who will conduct the IEE. It is done by someone outside of the school district. However, they have the right to put some stipulations on it, suic as mayvbe saying that the evaluator has to include observations at school as a part of that evaluation. The public school has to pay for the IEE. If they refuse an IEE, then get an atty or advocate because they are supposed to allow it.
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