Autism is classified as a neurodevelopmental disorder which manifests itself in markedly abnormal social interaction, communication ability, patterns of interests, and patterns of ...
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Bad IEP meeting
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Yesterday we had the meeting to get the results for our daughter's IEP evaluation and they are saying that they witness no autism in her or ODD behaviors. They say the only area she needs help is in some speech therapy. And even that is BS. What they say is her problem is much worse. They totally contradicted themselves. They say they see no autistic behavior but when we said about her rocking and flipping, pressing her face, walking on side of feet, etc. they are "oh we've seen that." HOW do we get help??? Now that we have the IEP that basically says she is NOT autistic (even tho she has been diagnosed by a specialist) the regional center probably won't help us. They base their support on the school IEP mostly. HEr behavior at home seems to be totally different. When at home she is defiant, sassy, won't listen at times. IT is difficult to get her to even get dressed in the morning. She cries about everything and goes into meltdowns or fits over the smallest thing. Another thing that was contradictory was that they say there is no problem but then her am and afternoon teachers say they see a major change in her in afternoon in behvior and could we possibly give her meds in afternoon. OK. There is no problem but they want us to medicate her more! What do we do to get help? We are transferring her to another school closer to home because we moved and are hoping to get better help there. Our rights say that we can request another independent eval at school cost if we do not agree, but it also says they can deny the request. The psychologist keeps saying autism has to be "pervasive" in all areas, not just at home, like we are idiots. I am ready to throw my arms up in the air and scream. Actually I did do that last week one day. lol. Any help? Any friends out thete? I need support. I am quickly losing all peace in my life.
Kim Posted on 10/28/09, 12:10 pm |
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Well, you need to get an advocate. You can call the ARC... they I believe are in every state... they are little to no cost. You need to go into the IEP with someone that can talk for you. Someone that will scare the school. Did you sign the IEP??? I would get on the phone tomorrow and call ARC or any local autism agency that is in your state and ask for resources. I would then get in touch with the advocate... meet with her and after you have found someone call another IEP with her present. This should scare the shit out of them. Good luck... most of us have been through this. We are here if you need any more advice. Good luck and stay strong. This is a long, long battle. Hugs Denise 
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With an IEP your work may be pointless if the teachers and school wll not fallow the IEP. I had a nice well planned IEP but none of the teachers would go along with it. My mother was very upset when she got this IEP and nothing changed.
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there is also an organization called copaa. www.copaa.org or www.copaa.com. they have listings of advocates by state.
i agree with denise . i think you need an advocate. and folks, if you are not happy with an IEP, you do not have to sign it. schools are always pushing to sign it at the end of the meeting and it is well within your rights to take it home and review it. they cannot make you sign it at the end of a meeting. www.wright'slaw.com is also a good resource for anyone to have.
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i agree about the advocate, I got one for my son and she has helped us so much over the last year. One thing I found out is even if you do not sign the iep- within ten days it will become record. So what we did was not sign it and then filed an appeal- and this sure backed them off, we came together this september and they had changed their views and are now providing services my son needs. And yes it is a long battle- we have been at odds for over 3 years now and I hope and pray every day that they finally have it .......
My sons school also will not recognize three different doctors saying he has autism, so we are not worried about what they want to call it at school just as long as they provide the right services..... hope this helps
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I went to the copaa site and called an advocate near me. She told me that I need to write a letter and send it certified mail stating that I signed the IEP under duress and that I do not agree that they are providing my child a fair and appropriate education plan. She was very nice, but would cost at the least 225 dollars that we do not have. sigh. She said it is not true about the ten days. I don't know who is right. What do you do when you have no money?
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i believe it is arc.org or you can also contact your state special education division and ask to speak to an advocate there.
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She also asked what kind of services am I wanting for my child and I do not even know. I dont know what they provide. : -( I feel very stupid right now
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well, if there is a problem with speech, speech therapy. i also get ot because my son has weakness in both hands.
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We are currently getting
1)O.T. for the strength in both hands as they are weak, 2) Social worker to work on social skills as he often does not understand the interaction with other kids, 3) pull out services to a smaller setting for all testing, independent work and other things. 4)Different emodes for noise levels in the lunch room and at asembilies. 5)Different emodes in the classroom such as a standing frame to work at, a carpeted area so he can work laying on his stomach, rocking chair- so he has movement , heavy backpack to make delivers throughtout the building when he needs movement. 6) Sensory intergration training for all teachers working with him 7) Oral testing when he is having trouble staying still, he also bounces a ball when taking these tests I know I am missing things, but they have really come around this year and he is happier and doing much better. They even developed a safety post for him as he saw all the other kids doing this and wanted to be included- so he has an indoor post and loves it. I also helped them develop a positive support coping plan, to assist with him when he is struggling. Positive meaning teaching them to be more positive and look at his entire enviornment when something is not going right- not just focusing on the behavior itself, he is telling them something through his actions. I guess the best way I can say it is- He only gets one education and they are going to provide the best one for him. Keep fighting everyone of our kids are worth it. I hope this helps- each kid is different and their plans needs to be written for the child's individual needs.
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