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Discussion:
Fredreichs Ataxia
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My husband has FA and there is no cure or treatment. His condition is progressive and this means his care needs are going up. I am interested in talking to other people with ataxia or their carers.
Posted on 10/07/08, 02:20 pm
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Reminder: This is a support group for Ataxia Telangiectasia. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Comment:
Email me when others reply to this topic help
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Reply #1 - 06/01/09  6:57pm
" hello my names janette i have 2 sons of 21 and 22 both with F A if you need someone to talk to give me a shout. "
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Reply #2 - 11/10/10  9:51pm
" Doesn't look as if there are many of us. I just found out and have no knowledge, but am a good listener. Plus you have Jetty 42 with her experience.

Good luck and bless you.

A. "
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Reply #3 - 05/03/13  9:53am
" Goodmorning All. God Bless You all!!!!!!! Have any of U heard of the rare disease spino cerebellar degeneration or cerebellar ndegenerattion ? "

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