What is Arthritis Juvenile
Juvenile idiopathic arthritis (JIA), formerly known as juvenile rheumatoid arthritis (JRA), is the most common form of persistent arthritis in children. JIA is sometimes referred t...
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How do I get coaches to understand JA?
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My son was recently diagnosed with JA. We have an excellent rheumatologist who has done extensive blood work and x-rays. He is currently beginning methotrexate treatment in addition to prednisone and folic acid. My problem is how to get the coaches at school to understand. My son, and his friends, claim that the coaches think he's fine (although I haven't seen their medical degree yet). Realistically, sometimes he is fine. Even when he feels bad, he still participates in sports. If he complains that he is sore or has stiff knees, the coaches make him feel like he's just trying to get out of doing the drills he doesn't like doing. It may be my son's perception and I don't want to make things worse for him. I have provided them notes from the doctor specifying which activities he can/can't participate in. They're not making him do things the doctor said not to do but they are making him feel like he's not believed. He wants me to let him handle it but I feel I should do more. Any suggestions?
Posted on 04/26/09, 01:04 am |
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Good Morning,
First my question to you is are these extra cirricular activities or mandated phys ed? If it is the later you should have your doctor order that a 504 plan be put in place, it's very detailed and hard to get into here if you are not familiar with one, and if your are I am not trying to step on your toes. As for the coaches understanding, I have found that joing the Arthritis Foundation has been invaluable. I was able to purchase a multitude of information from them, to include a pamphlet entitled " When Your Student Has Arthritis - A Guide for Teachers". It would be a perfect read for the coaches too, as it is fairly short, and will help them understand a bit better what your son is going thru. My son was diagnosed back in August of 08 and I am still in the learning process. But I hope that this little tidbit of information will help in some way. If you would like a copy of the pamphlet, I ordered 50. Send me your name and address to my2renough@yahoo.com, and I would be happy to send you two or three. Best of Luck. Rachael 
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i know just how your son fills..i have JA plus i have a floating knee cap it is hard some time to get them to believe me...so my mom just when and talked to my principle and he has a take with them and.and know it is a little better i guess.and i know is will be hard for your son but tell him to keep his head held hi it will get better
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