What is Arthritis Juvenile
Juvenile idiopathic arthritis (JIA), formerly known as juvenile rheumatoid arthritis (JRA), is the most common form of persistent arthritis in children. JIA is sometimes referred t...
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remicade in jra
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my daughter is 3.5 yrs old and has jra since she was 15 months old. her rhuematologist started her on remicade this week after a cocktail of methotrexate and enbrel didn't work. i've heard different things about remicade being used in juveniles and pediatrics and i am wondering if anyone else has a child as young as mine who is on such an aggressive treatment. i know they are doing the right thing for her but it just seems like so much for such a little person.
Posted on 05/10/08, 09:05 am |
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Hi
It sounds like our little girls have alot in common :0) My daughter was diagnosed at 18months and is now 4yrs. Like your daughter she has been on a cocktail of drugs the methotrexate and enbrel didn't work for her either. She started on the remicade in feb of this year but had to be taken off it after her second dose as she had a bad reaction to it she is now on the methorexate and humira it's still early days with it but it doesn't look good as of yet. I hope the remicade works for your little one. It is alot but when we finally find a drug that will allow them to run around and play like every other kid it with all be worth it. Good luck. 
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Hello - My daughter is 10 1/2 (was officially diagnosed around the age of 5 but we believe had it long before that) and started with remicade treatments a little over 4 months ago. Luckily there have been no reactions or bad side effects. It did seem to help some with the pain (YEAH!) but has not alleviated the swelling and hasn't really done much for her morning stiffness. Now we are working on tweeking the dosage and timing between infusions to see if that will help. At our last appt, Rheumatology Doc also talked about joint injections as a possible next step.
I completely understand the concern you noted about "aggressive treatments". I have often questioned the what ifs of the treatments as opposed to the what ifs of the disease. We as parents are often forced to make difficult decisions about the care of our kids and hope we are making the right choices. Take comfort in knowing we are all in the same boat with this one. Hopefully our children will always know our choices were made out of love and hope for a healthier future. Take care......
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