What is Arnold Chiari Malformation
Arnold-Chiari malformation, sometimes referred to as 'Chiari malformation' or ACM, is a congenital anomaly of the brain.
Arnold-Chiari Malformation II occurs in almost all ch...
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chairi headache vs. headache from a cold
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I've had headaches for so long that I can't tell whether it's a chairi one or if I'm coming down with a cold. The headaches have gotten significantly better since starting the diamox, but the taste changes are hard to take. Everything tastes wierd or has a wierd aftertaste. Are there any other meds that anyone can tell me about? I refuse to have surgery unless I am unable to walk, talk, etc. If anyone can tell me of other meds they have tried that have been succuessful? Also I have developed a severe case of acne on my back which has spread to my shoulders. Could this be a med thng? There is no rash though. I'm seeing my doctor tomorrow , so any advice would be greatly appreciated. Have a great day all!
Posted on 11/09/09, 01:11 pm |
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I was also put on diamox. It made me feel better at the begining then I started to get swelling around my head. Then it my head went from getting better to alot worse. i have no idea what medication to recommend to you, after trying so many I refuse to take them anymore.
best of Luck Haily 
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I take Topamax for my headaches have to take it everyday. I have been slowly increased on that med over the years though and I am now up to 300mg a day. It does have its side effects. Tingly fingers and toes lack of appeitite the higher the dose the dummer you get lol its effects you memory somewhat. but it does help your headaches. I am suppose to have surgery next year have done the med thing as long as i could now it is time to get this fixed well I hope help the symptoms.
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I wish I could take Topamax. I'd love to lose weight, for one thing. And if it would help the all-over, deep nerve pain, then what a blessing that would be!! I'm so glad you have found it working for you, Becky.
The thing is, Topamax has a "black box warning" on it for anyone with bone disease (like osteoporosis). My hematologist who manages my osteo meds does not want me on Topamax whatsoever. Bummer. Becky, you might should have a bone density test to be sure you are not dealing with bone disease. (if you haven't )....bone loss is something that is pretty much irreversible to any extent. here4ya
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