What is Arnold Chiari Malformation

Arnold-Chiari malformation, sometimes referred to as 'Chiari malformation' or ACM, is a congenital anomaly of the brain.

Arnold-Chiari Malformation II occurs in almost all ch...

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Advice:
Anyone From Ohio - Start New Support Group
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Is anyone here from Ohio? I'd really like to start a support group in Northwest Ohio, but I'm not really sure how to start? I know of at least 6 people, including my Mom and me, that have Chiari in this area.

I'm just not sure how to get the word out. I contacted the local newspaper about our story, but they never responded. I was hoping that would get people in contact with us. Any suggestions?
Posted on 12/12/08, 10:12 pm
13 Replies | Most Recent Add Your Advice
Reminder: This is a support group for Arnold-Chiari Malformation. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Advice:
Email me when others reply to this topic help
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Reply #11 - 08/14/09  10:13am
" Wow, I am surprised at how many are from Ohio. I am from Ohio, but now I live in Texas. Best to you all, I just had 2 MRI yesterday, waiting for results.
Karen "
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Reply #12 - 09/11/09  7:58am
" My daughter is 5yrs old and Chiari. We are from Cleveland. We also go to cleveland clinic. We see Dr Rothner. Please keep us in touch too! "
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Reply #13 - 09/11/09  8:15pm
" Hi, I am from Hilliard ohio. I am scheduled for surgery on Monday 9-14-09. "

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