Arnold-Chiari Malformation Support Group

Arnold-Chiari malformation, sometimes referred to as 'Chiari malformation' or ACM, is a congenital anomaly of the brain. Arnold-Chiari Malformation II occurs in almost all children born with both spina bifida and hydrocephalus, but ACM I is typically seen in children and adults without spina bifida.

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Lost and scared....

Posted by: Tabb

Last Reply: Arcticfox3 09/12/2023

5

Hi guys my name is Tabitha, I was diagnosed with Chiari type 1 about 4 years ago, I didn't have many symptoms back... READ MORE
Chiari and air travel

Posted by: deleted_user

Last Reply: jalilnitrogen 09/23/2022

16

Is long air travel (about 9 hours) safe for chiari patients?Does the headache, neck pain, nausea become worse at a high... READ MORE
Need Neurosurgeon in Northeast: 4mm Herniation

Posted by: kris278

Last Reply: JosephS1985 03/28/2021

8

I've been "sick" (as much as I hate to use that word) for the last 12 years. There's been one diagnosis after another,... READ MORE
5 years post decompreshon operaton tipe 2 chiari

Posted by: jnm

Posted: 03/29/2020

0

hi my name is joanna im 31 years old and this is my storyi was diecnosed with a sever tipe two chiari. i was diecnosed... READ MORE
Newly dx..bp issues with Chiari?

Posted by: Victoriam

Last Reply: Kittykel 12/11/2019

5

Hello..I was newly diagnosed with Chiari at 42yrs old about 3 weeks ago. I was taken by ambulance to the hospital... READ MORE
chiari and not much knowledge

Posted by: Ellebelly

Last Reply: razorbacks 09/21/2019

3

I had decompression in 2013 and then again in november 2018. All symtoms are back and im struggling to work or keep a... READ MORE
Great resource for Chiari information

Posted by: ChiariResearcher

Posted: 06/11/2019

0

https://chiari.wustl.edu/
Need Guidance

Posted by: Trusthim1

Posted: 03/28/2019

0

I am brand new to this site but desperately looking for someone else that understands what I am going through and who... READ MORE
Newsday Article Very well written about Chiari

Posted by: deleted_user

Last Reply: Thanos123 02/22/2019

2

Below is a story in today's Newsday about an independent analysis on NorthShore-LIJ's Chiari Institute conducted by... READ MORE
New to all this

Posted by: AmandaM1994

Last Reply: Deebea 08/30/2018

1

Hello everyone, My name is Amanda, I was diagnosed with chiari as a freshman in high school. The neurologist I had at... READ MORE
Help!

Posted by: Razor1916

Posted: 08/28/2018

0

Hi ..I have been heavin frequent pulsating headaches for the last year and recently been hearing my heartbeat in one... READ MORE
Just diagnosed ....have tons of sx

Posted by: ANGIE1990

Last Reply: cliffe 07/02/2018

3

Hello everyone, I'm Angie. I'm 27 and I had an MRI done recently due to experiencing extreme pain in my skull. ... READ MORE
after surgery limitations

Posted by: deleted_user

Last Reply: Caruans19 06/16/2018

18

Have not had the surgery yet but thinking in that direction now which is a step up for me. Not ready to run into the... READ MORE
Chiari and disability

Posted by: deleted_user

Last Reply: MaineTuffChic 06/05/2018

15

Has anyone applied for disability and won or are they giving you the run around because they think its just headaches.
Syrinx and Paralysis

Posted by: deleted_user

Last Reply: SrC_Answers 04/17/2018

13

I've heard that a person can become paralyzed if the syrinx is left untreated. I worry about it a lot. My ACM and... READ MORE