Anemia Support Group

Hi all it is really nice getting you , i am 25 years old boy living in Ethiopia.

I really was a member before but I couldn’t carry on because of some technical problem on signing in , so I came back with this .


So do you know ? I am very happy for getting you ok, because here it is not common so that I do not have friends at all , the doctors also told me that before . But now I get this site thanks to GOD,


I diagnosed with I Crohn’s when around 2001 after a lot of pain and suffer , the doctors also did not expect it , because it happens here at least 1 out of 1000000 people , so I took a lot of medications that did not go with my health problem ,most of them was making more worse and made me very weak and anemic . my hemoglobin reached up to 4 , it was very below form normal range , so I took a lot of transfusions again and again , because I had internal bleeding but the doctors was saying it is parasite and ulcer .


I passed on these way till 2003, finally I reached 33 pound , it means only bone ,wow scary . do u know at that time, there is a big stigma ,even they think like I am HIV patient because all the symptoms are similar with it , I do not blame them because they did not have any awareness even for HIV let alone for CD ,

They also compare it like God’s punishment, wow that is unbelievable , what was my sin a was only a kid , what I knew is playing football and having fun with my friends , how God do this for his son ,that is unbelievable and I do not believe on that , God really loves us , that is way he gave us courage and strength to fight with this bad health problem. .but it hurt much when they say like that ,very hard , the only think I advice for the m is to think about themselves , life has no any guarantee and do not know what will happen at the near future.


Then finally I got one doctor that finished his specialization at Sweden , and knew a lot about CD when he was there , when he saw me wow very angry and sorry for me , “why the other doctors did all this things for you with out knowing what exactly was ur problem” , do you know he asked my family to make barium meal and colonoscopy , and they did it and he knew it directly then I started steroid with IV , wow that saved my life . God sent that doctor for me, if he did not reach at that time will not be here.


But the recovery was not easy I took IV glucose for 3 months around 1000 bags with 2 blood transfusions , and 2 fistula surgeries. I had a lot of pain and suffer on my stomach because of all the complications, but I was feeling better and thanks God

The doctors also knew I had to have surgery but I am not strong for all stuffs , so I carried on taking steroid for 6 years because there is no any kind of medication for me other than it , it is other big problem at that moment ,


Then finally last year I went through big surgery and they took out around 22 cm from my small intestine and 20 from my large intestine, after that thanks to God I am feeling good and gaining weight ,


Do you know what bothers me much I already accepted crohn’s and willing to live with it , I also do not have any other choice , but how I can carry on with it , like with out any good care and medication , there is no hope for me . It really makes me sad and upset most of the time, I can not take steroid from onwards the doctors told me that . so what ? No answer, the future seems dark for me, I know the future is in GOD’S hand and I believe that , but do not forget we are humans and wish all the best for us especially when we are in this undeveloped and backward coutry specially in medical care .


My family also suffered a lot with me , they were gathering the money from others and putting our home at risk , I really have respect and thankful for them . but do u know what? I have no any courage to bother them again. I wish to die from before that happens again ..!!


I wish to be happy and strong and to bit it with out bothering others , I want to be successful person , I wish that ,


Do you you know what makes me more happy at the moment ,having contact with other feelow friends , when I get money my first chice is to go to internet café and read and knowing friends , no one understands you only each other and others friends that think for others more tha n them selves .

I wish to say thank u for all parents and loyal partners, I wish to have a nice partner understands me ,especially lining with IBD , here it is hard ,it is like finding a nail from the ocean ,


So please be with me and my friends ,ur mail makes me happy , do not forget English is my second languge , if u do not understand me I am happy to share with u more and try my best .


Respect

mrewhope
Posted on 11/05/09, 09:11 am