Anemia Support Group

Hi!

I have Pernicious Anemia and treatment is needed, I take cyanocobalamin injections every other week and what a difference it has made!

Hi Floridian,

Thanks for the response. I realize the group is small (it will get bigger), but just curious as to how you came about with your diagnosis.

Alot of different kinds of blood work, I couldn't tell you what kinds, I'm one of those patients that really don't want to know what they are doing or what they are testing me for because I get myself all worked up with fear. Sorry, I know I wasn't that much help.

Oh wait...do you mean what symptoms I had?

Ill jump in to this discussion and add that PA is easier to diagnose now...we usually send parietal cell antibodies and/or intrinsic factor antibodies...no more schillings tests, etc
Easy to diagnose so if anyone has anemia from a B-12 deficiency they should ask about it...of course PA is an uncommon cause of anemia as compared to iron deficiency....
Dr O.

There are a couple of my Celiac friends that are going to get tested for PA very soon... I wonder what the percetage is ... Celiac's with PA... just curious.

Great question..Ill find out for you...it is usually very difficult to become Vitamin B-12 deficient by diet alone..ill get back to you
dr o.

Thanks Dr.O... I'd love to know and I know you have the most recent research on everything!

Hello. I definitely have the Iron deficiancy. Every time I try to give blood I always get the same message. I really want to give blood to help but just can't. I think I need to eat better foods though. I don't eat too much junk but I also don't eat enough really healthy foods either.

I am 48 year old female with aplastic anemia. I survive on blood and platelet transfusions. My RBC is 7.8, my platelets are 30k and my white is 1.9. I also take exjade for the iron overload from the transfusions and receive 2 injections of aranesp which is a RBC booster.