What is Amyotrophic Lateral Sclerosis ALS
Amyotrophic lateral sclerosis (ALS, sometimes called Lou Gehrig's disease, Maladie de Charcot or motor neurone disease) is a progressive, almost invariably fatal neurological disea...
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So my frinds mother just got diagnosed with ALS...she is 50 years old. Im very worried and scared for what the future holds for her. I am studying to be a Nurse and I graduate very soon so I know alot about this disorder and the things that happen to the body and so forth. it scares me to think about it....do any of u have any advice foe me or calming words to help me get thru this??
Posted on 06/03/09, 08:06 pm |
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My husband was diagnosed a little over 4 yrs ago. Since his diagnosis, he has had to retire, and can no longer care for himself. We just take things one day at a time. That is easier for me than it is for him as he has way too much time on his hands to spend thinking about the what if's. My advice is to just take things one day at a time. Be there for your friend, especially as the disease progresses. As her mom is able to do less and less, she'll need the support of friends and family as much as possible. If her mom is well/strong enough to do things, help her get out to do them. Now is the time, help her get out and enjoy life before the disease ties her down too much. Be cautious of what you read on the net. The ALSA web site and the MDA/ALS web site are the only ones to really trust with info about the disease. There is a lot of bogus info and the disease is scarey and bad enough on its own without reading incorrect info about it. Good luck to you and your friend and her mom. God Bless! 
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My brother has ALS. I have tons of information. And I am an Advocate for ALS. Just message me if you have any questions.
Lorie
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