Amyloidosis Support Group

Hi Dawn,

Please let me know how's ur outcome? Have you found the treatments that works for you?

I have the same skin problem at my lower leg and I havent been able to wear anything shorts to show the sight of the skin.

Hope you have found your solution.

Dont give up.
L

Hi! It's been almost a year since I posted that. I did go to a dermatologist again to see if there was any kind of new treatment available. He was in his 70s, and he said he only saw one other case of this...and that was while he was still in residency! He gave me several topical things to try, but nothing has been effective.

I even wrote to Dr. Oz about this! Since he's going to have his own show starting in September, maybe he'll address it one day.

Honestly, I have my doubts about dermabrasion. From what I've read, I think the amyloid protein is not a cause of the itch but a symptom. So, it seems ridiculous to go through that much trouble and pain only to see it return.

You're lucky to only have it on your legs. This means that treatment shouldn't be too hard to find. Ask a dermatologist about trying PUVA. It's ultraviolet light treatment that works great from what I've read.

I have been suffeing from the same thing about 15 years now. Tried so many treatments, no use but developing day by day! If you will find any remedy, please let me know. Medical technology is in its highest...at present but still we are suffering!!