What is Alzheimers Disease

Alzheimer's disease (AD), a neurodegenerative disease, is the most common cause of dementia and characterized clinically by progressive cognitive deterioration together with declin...

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Advice:
Help dealing with doctors
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My poor father was originally diagnosed with alzheimer's about 4 years ago. He was finally put on Nemenda and Razadyne which seemed to help some but not much. About 7 mths ago my father suddenly did not recognize my mother. We took him to the doctors and they did a MRI but did not see any difference from one done a year ago so they attributed this sudden decline to alzheimers. He continued to decline and began hallucinating and becoming paranoid and agitated at times. They then put him on a low dose of seroquel which did not help sx at all. They increased the dose of seroquel and two weeks later he hit my mom thinking that she was an intruder. He ended up in the hospital where they changed his medications and made him worse, he has stage III kidney disease. He ended up in a nursing home off of the seroquel but on depakote and trazadone and haldol. My mom then took him back to md who put him on seroquel in the first place and she put him back on it. His behavior started escalating again and he became more and more agitated and violent. He is now back in the hospital and is almost non-responsive. THIS WAS A MAN WHO 2 MTHS AGO WAS PLAYING SENIOR SOFTBALL. This is a crime. It is so hard to see this happening to him and not be able to stop it. I want to demand that only one MD control his meds and make changes. Is that something that I can demand! Any other suggestions would be helpful and really appreciated.
Posted on 09/21/08, 05:09 pm
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Reply #1 - 09/21/08  8:57pm
" Legally, unless you have guardianship or power of attorney, no; your mother is his legal guardian as the law sees it, if he is incapable of making decisions. However, you can sit down and discuss your concerns with your mother, and see what she is thinking. "
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Reply #2 - 09/22/08  10:18pm
" my grandmother takes namenda and zoloft it seems to help at least for the most part. I do think that there is a legal right to only one MD controlling the medicine, talk with your mom and then with general practitioner. many blessings, gina "
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Reply #3 - 09/22/08  10:34pm
" p.s. the dementia support site has alot of info also regarding these issues. "
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Reply #4 - 09/23/08  5:23pm
" Absolutely, you or your mother can pick what doctor he goes to and what line of treatment is best for him. You need to find out if your mom has a durable power if attorney for him and does he have a living will. Because your dad is not compatent to make his own decisions one of you can. Remember you are the employer of the doctor. He works for you. You can hire them and fire them. First things you should do is find out about the legal docuements and then help mom with her decisions. Any doctor worth his salt will let your mom make the decisions for his care. You may want to start a short journal so that when you talk to the doctor you have all the facts right in front of you. My prayers are with you. jo "
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Reply #5 - 09/27/08  12:47am
" SORRY YOU ARE GOING THROUGH SUCH DIFFICULT TIME WITH DAD'S MEDS. HAD SAME PROBLEM WITH HUSBAND -NURSING HOME KEPT INCREASING SEROQUEL AND THEN ADDED DEPAKOTE - WORSE THING THEY COULD HAVE DONE. WOUND UP IN HOSPITAL IN JUNE, ALMOST LOST HIM. PULLED HIM OUT OF HOME AND IS NOW WITH ME AND NEW DOCTORS DOING MUCH BETTER. NO LONGER ON SEROQUEL OR DEPAKOTE. TAKING ARICEPT, NAMENDA AND GIVING HIM SPECIAL VITS AND SUPPLEMENTS. NO AGITATION, PARANOIA, ETC.
GOOD LUCK AND GOD BLESS
JUDANNA "
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Reply #6 - 12/15/08  10:04pm
" They put my mom seroquel on to she went crazy.You know there is a lawsuit out for that drug is not not good for people to take.I would never give it to my mom again or anyone "
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Reply #7 - 12/16/08  10:30am
" You or your mother have the right and yes the duty to demand one MD. You should also try and keep his meds at one pharmacy. They can often catch drug problems. You and your mom are his advocates since he can not speak for himself. Your love for your dad will get you through this. Here is a thought from my book, I hope it helps.

Tender Moments

If we have known love then we have known tender moments. These moments have brought a feeling of warmth and joy in the past. We wonder if we will ever experience them again now that we are immersed in our role of caregiver. The thing is that now more than ever it is all about love. The only way we can do this is out of love and compassion. These moments can be as simple as their sweet smile, shared laughter, or a simple look of recognition when they seem the most lost. If we share these tender moments of laughter, tears and compassion we will never become the victim. John Ruskin speaks about what a person gets for their toil. “The highest reward for persons toil is not what they get for it, but what they become by it.” "

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