What is Alpha-1-Antitrypsin-Deficiency
Alpha 1-antitrypsin deficiency (A1AD or Alpha-1) is a genetic disorder caused by reduced levels of alpha 1-antitrypsin in the blood. It can lead to emphysema and, in some cases, to...
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Well Halloween is in full session and it appears t...
thp636 Oct 31, 2009
Saturday, October 31, 2009
Well Halloween is in full session and it appears that turn out will be light. We are in the lull between the little kids and the middle schoolers. The little kids tend to be from our subdiivision and make the rounds early. Since our subdiision is small the middle schoolers usually don't hit our area until after they have hit the larger ones.
But even with that surge, it appears that we will h...
1 Comment -
Well, today I had the dreaded visit with the gastr...
thp636 Oct 28, 2009
Wednesday, October 28, 2009
Well, today I had the dreaded visit with the gastroenterologist. He is going to schedule me for the colonoscopy (Ugh!) soon. Because of my asthma and VCD he wants to do it at the medical center....just in case. He still plans on it being on an out patient basis but wants to keep his options open. His office will call me with instructions and to set it up after he checks with the anesthesiologist ... -
It's been about a week since I have made an en...
thp636 Oct 23, 2009
Suffering from writers bloc...or lack of motivation
Friday, October 23, 2009
It's been about a week since I have made an entry. I really must become more diligent about this. It's just that nothing significant has happened and I'm hard pressed to find a topic. Oh well, maybe I'll be like Seinfeld and write about nothing. He seemed to do rather well with it.
I'm feeling pretty good lately except I pay a lot more attention to Jamie Lee Curtis when she tal... -
It is cold, wet and raw in these parts. The urge f...
thp636 Oct 16, 2009
Friday, October 16, 2009
It is cold, wet and raw in these parts. The urge for outdoor activities is greatly diminished. I just go to the mall or the superwallyworld near me for exercise. I also spend more time reading and playing on the net as well as making full use of my TV/DVR. It's not unpleasant as long as I remember to go for my walks. However, that is something that I do scrupulously. I rather enjoy them...1 Comment -
I think my daughter gave me something that I don...
thp636 Oct 03, 2009
Saturday, October 3, 2009
I think my daughter gave me something that I don't really need. She came over the other day for some TLC because she had a bad cold and a sore throat. I think she may have given them to me.
I don't feel too bad...just very tired, and my ribs aches, and I have a very sore throat. MY PF's are also way down so I'm spending more time on the old nebulizer. Oh well, I had a good long ru...1 Comment -
My pulmonologist visit went well as expected. All ...
thp636 Sep 23, 2009
Wednesday, September 23, 2009
My pulmonologist visit went well as expected. All went well. I mentioned to the pulm that I was to see the g.i. doctor in October and that doctor wanted to why I was on protonix. He said he may want to scope the upper tract. The nurse parctitioner told me to be sure to tell him to call the ENT doctor first because my airway doesn't act right. (I have VCD as well as cough variant a...1 Comment -
Had a bit of a downer today. The family cat died. ...
thp636 Sep 18, 2009
Journal Entry for September 18, 2009
Friday, September 18, 2009
Had a bit of a downer today. The family cat died. She had a good long life and her passing wasn't unexpected but it's still sad. Who's going to keep me company late at night now when my inomnia kicks in and the household is still?
Oh well, she was 17 and had not been doing well lately so I guess it's not a tragedy. Just a bit sad like I said.
On a happier note, my wife' b...1 Comment -
The temperature has turned much cooler. It makes b...
thp636 Sep 08, 2009
Fall has arrived early and I'm on a roll
Tuesday, September 8, 2009
The temperature has turned much cooler. It makes breathing a bit easier and I am able to get about more. Actually I'm rather proud of myself. By being careful and more than a little lucky. I have been able to go more than a year without a trip to the ER. When it's very hot I tend to have trouble. I also have not had an upper respiratory infection this year. Those things plagued me for a c... -
Last Tuesday I went to the 50th birthday party for...
thp636 Sep 05, 2009
Saturday, September 5, 2009
Last Tuesday I went to the 50th birthday party for the very youngest member of my old baseball team. He started playing with us in 1977. Wow....1977. That was a looooong time ago. I must have been a 2 year old player-manager. It was a great turn out and we afforded him all the pomp and circumstance due a man of his advanced years. His aunts and mother presented him with a port-a-potty decor...1 Comment -
I went to a meeting for retirees about our medical...
thp636 Sep 01, 2009
Tuesday, September 1, 2009
I went to a meeting for retirees about our medical benefits for the coming year. The good news is that our benefits are about the same. The bad news is that it will cost a bit more. However, since I have been approved for medicare due to my disabillities starting in December, my cost would drop just a bit then. Now I know that there are a lot of medicare supplement insurances out there, but I dec...1 Comment -
I've been a little under the weather lately. N...
thp636 Aug 26, 2009
Wednesday, August 26, 2009
I've been a little under the weather lately. Nothing serious...just some bug. It does have me tired out though. (I wish my bod could run as fast as my nose can).
So I'm just resting.
Be well,
Tom -
--Great-- I moved into a condo with my brothe...
nikovdh Aug 21, 2009
Friday, August 21, 2009
--Great--
I moved into a condo with my brother. We no longer have to deal with our step dad. Big stress relief.
I've been more able to move around more.
--Bad--
Breathing problem worsening, most of the time I have to assume that I'm breathing. It feels
so inflated and puffy when I breathe, if that makes any sense. (perhaps thats what asthma feels like). I think I have cancer and will die soon.
...1 Comment
Saturday, October 31, 2009
Well Halloween is in full session and it appears that turn out will be light. We are in the lull between the little kids and the middle schoolers. Th...
1 Comment
Alpha-1 Antitrypsin Deficiency Information
Alpha 1-antitrypsin deficiency (A1AD or Alpha-1) is a genetic disorder caused by reduced levels of alpha 1-antitrypsin in the blood. It can lead to emphysema and, in some cases, to liver disease.
Symptoms of alpha-1 antitrypsin deficiency include shortness of breath, recurring respiratory infections, or obstructive asthma that does not respond to treatment. Individuals with alpha-1 may develop emphysema during their thirties or forties, without a history of significant smoking (although smoking greatly increases the risk for emphysema). A1AD also causes impaired liver function in some patients and may lead to cirrhosis and liver failure (15%). It is the leading cause of liver transplantation in newborns.
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