What is Albinism

Albinism (from Latin albus, meaning "white") is a lack of pigmentation in the eyes, skin and hair. Albinism is an inherited condition resulting from the combination of recessive al...

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Discussion:
my life as an albino...Part 1
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Well being born with albinism is definally a struggle that i have to deal with on a daily basis. It is something that had and will affect how i live my life for the rest of my life.

Growing up i knew i was different from the other kids. I always had to wear a ton of sunscreen and a hat when i went outside and when i went swimming in my pool. I was always gealous of my brother who was tan and perfect. He is the exact opposite of me. He's tall and tan with brown eyes and hair. Well me...i have white skin, blonde hair and blue eyes. I'm not exactly what you can call a true albino...my eyes arn't red and my hair isn't snow white anymore...but i'm still albino. When i was born i had snow white hair...but over the years my hair has changed a little..well now i dye it.

I didn't exactly have a normal childhood. I was the girl who was call "casper" or "whitie". At the time i just took the bullying and didn't care. I had the best friends in the entire world...i didn't care what anyone else thought. My true friends didn't care that i didn't tan...they saw beyond that. I think thats what made me ignore the other kids.

There were limitations to being a teenage though, While my friends were all planning a trip to the tanning salon...i felt so low. That was something i knew i could never do with my friends. I hated going to the beach. I love the beach and everything...but i can't lay out in the sun like everyone else...i had to sit under the umbrella like a dork.

I just wanted to share part of my story with everyone...i have alot of experiences with albinism...so if anyone wants to know anything about it....just write me
Posted on 03/15/09, 07:03 pm
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Reply #1 - 05/09/09  9:23am
" hi, i have a 15 year old nephew who has albinism, he is just coming up to doing his exams, it recently came to light that he had been badly bullied at school and consequently he is having panic attacks etc, has been seen by the gp and has been referred for counselling etc, i have tried to encourage him to log on to web sites etc to see if he can meet anyone with the condition but he appears affraid to do so. i wonder if you have any advise, he only had a few friends who seem to be leaving him behind and he is very lonely, do you know of any support groups etc in the uk
thanks liz "
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Reply #2 - 11/19/09  10:25pm
" Take pride in your uniqueness and embrace it! If you do not see the beauty in yourself, no one else will! Thank GOD you have great friends and although it's a struggle, it could be worse!! "

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