Parenting Teenagers (12-18) Support Group

I am sorry to hear of your diagnosis and prognosis. Not even similar really but I have cancer so I know what it is like to have a limit on the calendar of life.

I would imagine your parents are sad to see you sick knowing the end is near. I don't know that there is anything you can do to make it better. Although doing more chores is probably productive, it isn't going to make them feel any different about your illness.

Maybe find some thing you guys can do together that creates joy and memories. It can be something amazing like a road trip or something as simple as making cookies or something else like that together. Watch movies together, share stories, spend time together.

And if your parents are so sad that they can't function, they really need some help with a counselor trained in end of life concerns. Not saying it is time but you qualify for hospice if you are no longer receiving life saving treatment. Hospice is there to help you and the family prepare and feel comfort with what is happening in your life. Don't be afraid to reach out for that resource. They can help alot.

Hold out hope for some miracle or some improvement that gives you comfort and extra time. I wish you great luck in building memories with your family.

Aw, I'm sorry youre sick too :c we did try a councillor once and she was really rude to me and even suggested that i should be punished for being selfish because i wanted to try for a job so we'd have the money to go somewhere as a family and that i didnt really care and only wanted it fpr myself....so they havent wanted to try another one :/ thanks though ^_^ watching movies sounds like a pretty nifty idea~ :D

I'm so sorry to hear your situation. I can't imagine what it would be like as a parent to be faced with having my child in your situation. I feel for you and for your parents. What a great thing for you to want to make it easier for them. I guess, it would be a good thing to do as much stuff together as possible. I too had cancer in my past, but am fine now. It makes you realize what is really important. I am thinking about writing letters to my family that would be opened by them in the event of my death. Are you not a candidate for heart transplant?

That sounds like a really good idea! I have a journal full of just random stuff about life and how i feel about certain people and things. Maybe I'll separate the stuff about people and have it mailed to them like that! ^_^ And nope, the lvad is destination therapy.

Do you have a list of things that you would like to do? I often think about that and wonder what I would put on it. How do you feel about all of this? It must be scary for you.

Nah, I'm pretty content with stuff. It just sucks to see my parents really sad about it. On occasion its scary for a bit but for the most part its no different then how anyone else would live? Like anyone could die any moment so its best to just enjoy yourself and have fun :) no point in being sad and upset. Thats not fun anyway.

The surgerys kinda scary though, not gonna deny that. I really wanted to be awake and watch it but they said no :c thats the only really bad part

You've got a really great attitude! We could all learn alot from you : )

I don't post a lot here, but you sound so upbeat and loving. Your parents are very lucky to have you and the fact you are concerned about helping them is really nice. I think the best thing is what people have offered up. Though I know I can't really understand, the chores you do and things is nice, but i think taking a road trip or doing something fun together, even trying new things (if you feel up to it) to create some fun together away from the Dr's, illness, even home, to just give you all something more to hold onto.

The best you can give them is what you are giving yourself though, a chance to get out there and enjoy what you are able as I am sure this is hard, but your attitude is awesome!

The writing is a great idea and don't be shy with pictures for all of you. Have fun!!!! Enjoy your life, and you know what, no one is absolutely sure of your time to go, so here's to hoping for a much longer future than the Dr.'s could ever imagine :)

Wow, you are a great kid and I think your parents are grieving prematurely. Let them know you still want to enjoy life and you need them to be strong. As a parent, I cannot tell you how I would feel if this was happening to my son. I would be extremely sad and depressed too, but it is not fair to make you suffer more than you already are. Talk to them and if that doesn't work, pray.