What is Addisons Disease

Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It...

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Discussion:
Survey
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I got this from facebook

Bird

http://www.surveymonkey.com/s.aspx...

Eric Fiedler, founder and co-leader of the Baltimore/D.C. Addison's Support Group, has taken it upon himself to conduct a survey of adrenal insufficient (Addison's disease and 2ndary adrenal insufficiency) patients.

Eric is a senior at John Hopkins University in Baltimore, Maryland, working toward degrees in neuroscience. This survey is being used as Eric's Undergraduate Research Project. He has the backing of John Hopkins U. and is conducting the survey under the supervision of Dr. Roberto Salvatori.

Dr. Salvatori is an endocrinologist at John Hopkins University who specializes in adrenal diseases. He also is one of the foremost researchers in that area.

Eric's is calling his survey the "Qualitative Study on Cushingoid Syndrome Associated with Corticosteroid Replacement Therapy" and can be found at:

http://www.surveymonkey.com/s.aspx...

You will also be able to access the survey from the NADF Website (www.nadf.us).

The survey should be completed by patients who have adrenal insufficiency, with the exclusion of those who's adrenal insufficiency is due to adrenoleukodystrophy, adrenomyeloneuropathy, congenital adrenal hyperplasia (all types) and AIDS.

If you have any questions or need help in any way, please contact Eric Fiedler at efiedle1@jhu.edu (609) 432-4102.

Thank you so much for your participation!

Best -

Melanie Wong
Executive Director
National Adrenal Diseases Foundation (NADF)
505 Northern Blvd., Suite 200
Great Neck, NY 11021
(516) 487-4992
NADFMAIL@aol.com
www.nadf.us
Posted on 10/28/09, 08:10 pm
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Reminder: This is a support group for Addison's Disease. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 11/04/09  10:39pm
" Hey, I took that survey on FB last week, thanks for his contact info. You are awesome! "
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Reply #2 - 11/06/09  4:13pm
" this was a great survey! thank you for the contact info. "

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