Addison's Disease Support Group

Hello Vanyel,

I do the exact same thing. I can go and go and go...but then I need a whole day of resting. My husband gets tired of me crashing here and there. But he lets me sleep when I need it. I even started biking again, but then after 2 miles...I felt dizzy and had to rest for a bit. But the next time I took an extra prednisone 30 minutes before I rode.

I'm the crash and burn queen! It's become ridiculous. By the end of the work day, coming home to 3 kids by myself, and going to their extra curricular activities I don't feel like I'll ever get better. I've been on Cortef now since August.........some days are great, but others are really bad.......guess it's something we have to deal with but it sucks. I'm still unable to exercise. The shortness of breath is crazy.

Glad to hear I'm not the only one. This is getting absurd. Its only Monday night and I'm so tired already I don't know if I'll make it through the week. I may have to take extra steroid out of desperation. What kind of nonsense is this? I truly fear I am not going to be able to keep working.

Good grief vanyel,

I wrote for an hour and the mouse jumped to the founder of the support group. Lost everything again. :(

Yes, I've always been that way too. I'm worthless so often anymore. I feel so weak, and exhausted all the time. I see where some write abt their exercise and schedules. I don't know how they do it! I wish I had just a tiny bit of it. (praying these Dr's can do something for me in Jan ) I had a bit last week, but just didn't feel good. Then had an infection and fever, so there went what energy I did have. I've canc a bone density and labs for the Endo Dr's twice because I didn't have the energy to get ready and drive into town. That's rediculous. Normal people look at you like you have two heads. Call and canc because you're too sick to come in. Ya never know from one day to the next what to expect. I've always hated that.

I'd written to you before with answers abt the tests you looked over for me. And it disappeared and I never did rewrite. but had also written abt CFS.Were you ever diag. with it? I noticed almost everyone on this support, also have CFS listed.( I never do my others, I can't keep up with one.) Is it an early symptom of the AD or AI? The energy levels many still have. I wonder, Does being diagnosed earlier in life and treatment started have a role in any of it? You've been a long time sufferer. I've been 20 + yrs. Not knowing what was going on. And in a way still don't. Same with many others.

It seems this is a cross we have to bear for some unknown reason. It seems it runs a cycle somehow. You're right about it running your life. It sure has mine. As the exhaustion got worse each year, and more frequent, the less I could do or keep up with. I feel like I've spent so much of my life trying to feel good, or just normal.

I'm right there with all of you. I just want to be normal but I can't because I'm physically and mentally exhausted and have often wondered how can I continue my job? 8-5 running around a dr.'s office. STRESS!

Yes, I do this, too. The way that I have learned to manage it is to try to schedule a "crash & burn" day, if you will. It is usually on the weekend and I just plan to sleep all day. If I do this, the unscheduled crashes do not happen as often as if I don't. It is hard to take that day each week (so much to do & family thinks does not understand). But, I have learned that I will get very, very sick, if I do not take one day and SLEEP all day long.

Lacy
I pretty much count on at least one day a week of nothing but sleep too, but my body doesn't always cooperate with my schedule. And I have so many things I want to do it is hard to give up a day every week. I usually feel so awful though that I have no choice. I wonder why the doctors think this is acceptable.......

Vanyel

There are some days where I feel like walking out of the office and going straight to a disability lawyer. lol I dont' even know if you could get it for Addison's but when you can't function as a human should MOST days because you're worn out from a crazy job, what else do you do? It gets so aggravating. When I was first diagnosed, I took a week off of work, the meds kicked in, I felt great. Started back to work after a week of rest and 3 weeks later, CRASH AND BURN and has been ever since! :-(

Have you checked vitimin D levels? I was getting progressively more exhausted for about 3 months. Blood test showed that my viamin D levels were low. I was really surprised to have this problem because I spend a lot of time outside and eat a balaced diet. I've been on a prescribed supplement for about 3 weeks and my energy levels have returned to normal. Apparently AD patients have a tendency to have problems with D absorbtion.

My doc says everyone in the northern hemisphere is deficient in vitamin D. I have been supplemented for years now. Unfortunatley it has done nothing for my fatigue or pain. Most docs are all over the vitamin D thing these days. Its a hot topic.