Addison's Disease Support Group

Are you taking hydrocortisone or another steroid? Have you been tested for adrenal insufficiency? They can run a ACTH stim test to check for adrenal function. Its strange that an endo would make such a generalized statement withouth running any tests to confirm/rule out a diagnosis.

Hi, been in your shoes for years. Now finally after being treated only by a phys. assistant, and him referring me to endo Dr.s, it's a mess. Referral said uncontrolled. They said the dose I was on, it should have been controlled. I should be feeling great. Was on hydro. 60 mgs. But had been sick, and had a lymes titer come back positive. So the PA increased it. Then discovered after it was pretty bad, wih an awful bladdder infec. I know I had it then when I went to the Endos. They were yanking records from stuff I'd taken, saw a resident first. Then the other Dr came in, but he's a Resident too. They kind of hinted that my insufficiency is from yrs of steroid use, finally the adreanls aren't working. The lymes Dr I saw this summer, said he suspected a Pituatary, hypothalamus, thyroid problem. We'll see I guess. Had been diagnose 2 times. Once back in the mid 90's. Then no meds and again diagnosed last fall. But they ( endos ) were asking for symptoms, I was so confused at that point from all the questions, didn't know from which diagnosis they were asking abt. My head spun the whole way home. I've felt so bad for so long, that you learn to live with whatever symptoms you have. I just blanked out! Total brain freeze. Go back in Jan. There was a Dr in Danville I could get in to see the end of Dec. But they made another appt for another hosp. I needed seen sooner. Not impressed with these Drs. Wish I'd kept the 1st appt in Dec. That guy specialized in Adrenal problems for 29 yrs. Could kick my butt. I'd phoned them to see if I could get in sooner, and they had a Dr that came to a clinic once a month from the same grp as the adreanl dr. But was also in Dec. So, now I have no idea what's what. Need to write stuff to ask and remember to tell them.
I'd lost close to 68 lbs over a yr and a half. The last 5 months it just dropped off. I weighed 100 lbs. When admitted to the hosp for pneumonia they discovered the AD, thank God. I'd had tests galore because I had tumor marker tests elevated also. So they'd checked everywhere.
long stry, but I'd posted the first time back I think Apr maybe. More info there. I had and still have the muscle wasting. But due to back and neck problems, they decided against PT. I try to walk when able, but have been having a hard time. When ya don't have any energy, you can't walk.
I'm surprised to you're endo Dr said abt depression, and GI problems. Although they both cause the same symptoms as AD. I mean the wt loss, and muscle wasting.
I saw you were to see a Dr the day you posted. How'd you make out? I've not been on for a while. having other med problems.
Good luck, and hope you got some answers.