What is Addisons-Disease

Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It...

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Tuesday November 24, 2009

Frustrating Stories

  • This Is SOOOO Not Fun!

    Friday, July 11, 2008 | A Frustrating story

    Ok, it's like hour 66.75 and I'm really having to fight my craves! 
    We decided to go get bbq pulled pork sandwiches and then enjoy our favorite dessert (this is all part of our go to non-smoking places plan).  Well, after dinner I could hardly stand it!  I wanted a smoke SOOOOOOOO BAAAAAD.  Then, to make matters worse, a monsoon rolled in and it started pouring.  ...

    1 Recommendation

    4 Comments

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  • Tangie is getting there and so am I!!

    Monday, October 13, 2008 | A Frustrating story

    Tangie is getting there but unfortunately it will take a couple of weeks for the medicine to take full effect.  She is still lethargic but she is sleeping in her bed a lot more.  She is so smart that at times I can't believe it myself how smart she is.  I am going to pick her up after I finish my journal.  Well today was a day of sleep for me because even though I sit in a...

    1 Recommendation

    3 Comments

  • I don't feel very well today!!

    Wednesday, October 15, 2008 | A Frustrating story

    Well I have a new disease to get used to.  I went out for two days (how exhausting can it be to push on a toggle to run an electric wheelchair?) and then slept for two days.  Between the MS,  the Fybro,  and now the Addison's all are supposed to cause fatigue and that's what happened.  I am worried about getting the tooth pulled because that is surgery in a way an...

    1 Recommendation

    7 Comments

  • I feel like sleeping beauty - just waiting for the frog (prince)!

    Thursday, October 16, 2008 | A Frustrating story

    Well I've turned into an expert sleeper.  This morning the visiting nurse woke me up with a surprise visit - changing the foley which I have trying to get done through them since I left the hospital at the end of Sept.  It was interesting because I had to chuck all my medicine right away including the Florinef because she was going to get a wacky reading.  She did twice.  ...

    1 Recommendation

    5 Comments

  • Now Tangie has to fast for 24 hours.

    Friday, October 17, 2008 | A Frustrating story

    Well I have Tangie fasting for the 24 hours so that I can feel her the boiled chicken and rice after she fasts to get rid of the diareah.  She lays in front of her food bowl and seeping right now.  I feel so bad because she is used to having food in that bowl all day long.  It's like I'm torturing her and I don't mean to.   We'll get through it.  We&#...

    1 Recommendation

    3 Comments

  • Nick is still so confused and I'm ok as far as the nodule!

    Wednesday, October 22, 2008 | A Frustrating story

    Well I had the mammo done and the ultrasound done and the only thing that they found that looked remotely like a nodule was a lymph gland that was as tiny as the nodule was supposed to be and it was in back of my breast not in my breast.  I don't understand how a good radiologist could miss that one.  He couldn't tell a lymph node from a nodule?  Well anyway every...

    1 Recommendation

    3 Comments

  • What is there to pray for? More illness and suffering?

    Sunday, October 26, 2008 | A Frustrating story

    I don't know what there is to pray for anymore.  I have an aquaintence on here that was in the same or more pain that I was in before I got the pump.  She was so happy because I had sent her  a message with Medtronic's phone numbers on it and told her to call at least on of the numbers and they would give her a doc's name that implanted it in her area.  She has kid...

    1 Recommendation

    6 Comments

  • I am going to say a few things and that's not like me!!

    Thursday, October 30, 2008 | A Frustrating story

    I have to talk about today and tommorow tommorow.  I have to get some sleep since I didn't sleep at all last night and I have a 11am doc's appt tommorow.  Have a geat and restful night and I'll tell you the interesting story of the past two days in one entry which might take 2 days to read!!  Huggs   galed

    1 Recommendation

    3 Comments

  • Just another part of the crappy life

    Sunday, May 10, 2009 | A Frustrating story

    I guess misery and depression is going to be the rest of my life from now on.  I want out of this world so bad that suicide even sounds really good.  I think I am finally getting lead way with this stupid tumor and then my pituitary gland dies on me.  Now my cortisol is so low I'll probably have to be on steroids the rest of my life which I am refusing to take.  I am tired...

    1 Recommendation

    2 Comments

  • IBS Wins Again

    Saturday, June 13, 2009 | A Frustrating story

    Another weekend doing throne time.  It's getting kind of old.      
    Hope to do a real journal run tomorrow.  Y'all take care, now!!!!

    1 Recommendation

    6 Comments


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