What is Acromegaly
Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). ...
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Monday November 30, 2009
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just had a phone call from my nurse at the hospital. jokey hello!!!....lol sondra said that you said hi so im just saying a big hello back. she has just told me that my levels are still not down to what they want them to be so they have decided instead of giving me more tablets is to give me an injection. jokey she asked me to ask you about this one as aparently its the same as what you have. for...
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Any Guinea Pig people? Come and join the forum!!
http://guineapighutch.invisionplus.net1 Recommendation2 Comments -
goodbye eveyone1 Recommendation
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BLOOD TEST RESULTS BACK AND MY ENDO SAID I AM NORMAL...LOL
now they are 45.1 right in the middle for normal, for my age!! im so happy. my next mri is going to be start of next year. to see if it has shrunk. they said that they will only remove it if we want to have a baby, so i dont have to take drugs. is this normal??? anyways i am so so happy x x yay1 Recommendation4 Comments -
Hi Lisa,
Thank you for contacting us. We would be very interested in watching
your video and, if possible, working together to raise awareness about
Acromegaly.
Can you send a DVD copy to the address below (or a link to online
access)? We'll do our best to have a look at it as soon as we can and
get back to you.
I look forward to hearing from you.
Take care,
-Kit1 Recommendation4 Comments -
the website agreed!!! and its there a link and oh they have been so lovely. check out the link to their website and see what you think, rose my autograph ill send in the post...lmao!!!
i cant believe it im just in shock!
http://www.pituitary.org.uk/content/view/351/105/1 Recommendation5 Comments -
This is the e-mail i have from the pitituary website that is helping spread awareness
Tuesday, January 27, 2009 |
by: flouncy
Hi Lisa,
Well, honest reaction: goose bumps. I still have chills. That is very well done, the song you chose is beautiful and you were able to relay so much information in a very short timeframe. You did a great job!
What I’ll do know is post this link to our online patient forum (www.pituitary.org.uk/forum) as well as on our website in the News section. I’...1 Recommendation2 Comments -
i cant believe it!! ok so this morning i get an e-mail form kit who is part of the pituitary foundation.org.uk asking if i want to take part in an article about acromegaly. she said that the journalist is well known form the independant and the guardian (uk) newspapers. and she wants to talk to someone who has got acromegaly. to my surprise kit said that she had passed my video on youtube to the ...1 Recommendation5 Comments
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IGF-1 is 36 (normal range is 12-47); Growth hormone is 5.4 (normal range 0-15); and Prolactin levels is 40 (normal range 85-500). The best news is that the tumour has shrunk. I was diagnosed in Nov 2006 with a macroadenoma measuring 20.6x18.3x17.6mm. It now measures 11x13x16mm. The only bad news is I am still glucose intolerant. Diabetes is also in my family so need to lose the weight, part...1 Recommendation4 Comments
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ok so i didnt update earlier. but what a night tonight. my hospital are having a support group night. with nurses endos and doctors attending aswell as patients. i got a phone call the other week from the lady who takes my blood tests at the hospital saying she has seen my videos on youtube. omg!!! i cried as she said she was very proud of me and asked if she can show the video during the night t...1 Recommendation2 Comments
