Acromegaly Support Group

ooh flouncy such diffcult decisions.......I don't know about the funding...I am guessing hormonally all kinds of things would happen..I so often here preganant women talk about how their nails grow etc....so i wonder if it would be even more...well the acro family...i am sure wiil respond

thank you for your response :)

Hi Flouncy. I'm sorry that i have no real answers to give you, but i am really interested in how pregnancy and acromegaly work together, All i want to do is get over my operation and have another baby :( i realise its not going to be as easy as that and i like you have lots of difficult decisions to make in the future but i dont think i can stand the thougght of never having more children. it just seems so unfair. i will be following your progress with great interest and i wish you every happiness and good health in whatever you decide to do. I hope you can find more information and hopefully get your doctor to give you a bit more support.
Love Lisa
xx

Hi there.

I was pregnant with my baby daughter Penny (born 11/07/08) with undiagnosed Acromegaly, possibly even had it when pregnant with my wee boy in 2006. As my doctor thinks my diabetes is caused by my Acromegaly and broad hands/feet then this would suggest I have had the disease for a while? I was only diagnosed 2 weeks ago. Other than the diabetes no other side effects came up that couldn't be attributed to being pregnant (joint pains, palpatations etc.). I think the changes come on gradually so may not be too drastic in 9 months. The doc noticed changes in my face in a year but quite subtle. I guess it all depends on the individual tumour and how it acts on the body. Wish I could give you definite answers but Acromegaly will affect each of us very differently. All I know is that I would have gone ahead with my pregnancies in any case accepting that there would be a lot of medical intervention (scans etc). My MRI scan to look at tumour not till next week so have no idea the stage it is at. Just wanted to let you know my experience in case it was of interest. All the best, will be thinking of you. Evonne x

Hi Flouncy, such a difficult decision for you all, I hope your team can give you some good advice, in whatever you decide.

Please keep me updated on your progress and the decisions that you face. I'm 30 years old and recently married and would love to have children someday. I've been diagnosed with acro since 1996. I have all the same fears as you, and realize that I'll just have to cross one bridge at a time. My husband is very understanding and says he will stand by me no matter what, but we both would like to be parents one day. I'm on the lanreotide injection and dosenex, and was told I have to quit them before conception.

well I think i am just the person you need to talk to.... my name is vikki im 28 years old. i was diagnosed w/ acromegaly in 06... i had my surgery the same year. i thedn went on to medication lar 30 mg... i wanted to have a baby desperatly. i talked to my endo about this, and he explained to me that being pregnant would actually work like the medication.. because of the elevated estrogen. he started me on bromocriptine. i was pregnant within a few weeks (amazing I really am a women).... during my pregnancy the checked me alot for high b.p,diabetes ect.... i did gain alot of weight 80lbs... but let me tell you how worth it it was... i have a beautiful babay 4 months old i breast fed for 1 mointh then had my radiation. im back on lar and fell great.... if u want to know more details just ask...... go for it and good luck
vikki

A warm welcome V...Im so pleased someone at last has been able to put about being pregnant and having acro....Im sure Flouncy has been going through it with this one...Hey Flouncy when you come back on from your visits to the gym no excuse theres other places for a good work out....:) so ROFLMAO here oh boy am I in trouble crack up Im off....

jokey!!!! lol sounds like a good work out to me!!!! :P im sure raging wouldnt mind that one...

to update the endo has put my fears to rest and all is looking good fro preperation for a baby. he said that everything is looking good thus far and i should start medication of a different kind for the first couple of months and then completely come off meds untill baby is born then i can have the meds im having now again. such a big relief. he said that acro shouldnt flare up so quick over 6 months so i should be fine and baby too. thank you to everybody for all the messgaes and support!!! and i shall be talking to vicki a whole lot more i hope to get as much info as i can bless her thank you so much sharing . i will defo keep yopu all up to date. i need to find out whjat meds it is then get them and trust me the trying wont be delayed....lol.

Good luck Flouncy
Enjoy :-) lol