What is Acromegaly
Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). ...
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Post surgery results
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Looks like I may be here on this board for a while yet...
I went up to the hospital today to review the results of my post-surgery tests, MRIs, etc with the doctor (along with the visual fields test that they seem to do every other time I go up there). The good news is that my IGF-1 and GH are down (IGF-1 in particular was very high at 131 before surgery) but the bad news is that they are not down enough. Where the acceptable IGF-1 range is up to 32 (sorry, don't know units), I am 45. In my oral glucose tolerance test, I should be suppressing to 0.3 or lower and I am suppressing to 0.8 (sorry, again don't know units). All other hormones are within range. So, not terrible, but not cured. The consultants will meet, and let me know their opinions as to further treatment, whether that is more surgery, octreotide, or radiotherapy. I had, of course, hoped for total cure, but it looks like that has proved a little elusive. John Posted on 06/24/09, 12:06 pm |
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Well, I saw the consultant today. Although my GH is only slightly elevated now, he is recommending that I start on lanreotide (Somatuline) on a monthly dose. With this in mind, I have another octreotide suppression test to look forward to in a couple of weeks, where I have to fast until 3pm while they take bloods every hour to see how a single dose of octreotide suppresses my GH.
So at some point in the next few months, I will be joining those of you on the monthly jab. After the first hospital-administered injection, the hospital will send down an endocrine nurse to my GP's to train them in giving the injection correctly. Thereafter, it will be a two minute stroll from my front door to the doctor's to get my monthly injection. John 
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