What is Acromegaly
Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). ...
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What is the size of your tumor?
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Tumors smaller than 1 cm are microadenomas, larger that 1 cm are macroadenomas, and larger than 3 cm are giant adenomas.
Mine is currently 3.5 x 3.0 x 3.3. I know that it's pretty big. I have is a giant prolactinoma, for which surgery is not the best option. I hope it will further shrink because of medications I take. What's your size? Posted on 04/03/09, 04:04 pm |
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My tumor originally was 4.8 x 4.6 x 4.8.
Medications helped to shrink it. "Luckily", it is a GH-secreting prolactinoma, which makes shrinkage more significant. 
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Hi,
13mm 2 surgeries, remnant tumour, radiation, med levels not coming down, next step I think is Pegvisamont.
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By the way - I am still puzzled by how they measure the tumors.
As I understand, they pit tumors are of are of irregular cup-like size.
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I meant cup-like shape.
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Hi - how are you doing?
Just got the scan results on Tuesday - my tumor is 1.8cm x 1.1cm and they want to surgically remove it. They are going to try monthly injections first as I will have to wait a long time for the surgeon.
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Mine was 9mm.
Had an op. 8 mts ago. IGF-1 dropped from752 to125 after the op. Last MRI done last week showed no more tumour! IGF-1 and GH still within normal range. Not on any medication at present.
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I'm a new member and I am learning a lot from reading about your experiences. My profile contains a history of my experience. I am wondering whether surgery is better for me or should I try taking octreotide for awhile to see how i respond and whether the tumor shrinks. I hear that a lot of people who have surgery end up on meds anyway.
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