What is Acromegaly
Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). ...
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What is the size of your tumor?
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Tumors smaller than 1 cm are microadenomas, larger that 1 cm are macroadenomas, and larger than 3 cm are giant adenomas.
Mine is currently 3.5 x 3.0 x 3.3. I know that it's pretty big. I have is a giant prolactinoma, for which surgery is not the best option. I hope it will further shrink because of medications I take. What's your size? Posted on 04/03/09, 04:04 pm |
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Mine was 7 to 8mm. Hopefully now 0cm. I'll have an MRI in a few months in which they should be able to check.
John 
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Mine was 5mm X 8mm X 10mm based on the MRI done Feb. 20, 2008. My GH & IGF-1 were 10 times greater than normal. After surgery, GH was within normal range but IGF-1 was slightly elevated at 276 (Endo wanted it between 92-190). Have had blood checks twice since going on Sandostatin LAR and both GH & IGF-1 were within desired range. Seeing my neurologist next week & Endo in two weeks.
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Most people diagnosed with acromegaly are found to have macroadenomas, around 80%. It's mainly to do with the amount of time it takes for the main symptoms to become apparent and someone to make a diagnosis.
My tumour is 1.1x1.5x1.5cm that makes it a macroadenoma. www.acromegaly.wordpress.com/2008/... Trys
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It is interesting that so far I have not had some of severe effects described by others, who have smaller adenomas. My IGF-1 levels initially were only four times as high as normal. So perhaps size is not the most decisive factor.
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Yarick,
If I'm reading it right, you have a prolactinoma, so you have primarily a prolactin-secreting tumour, am I right? What levels are your prolactin, if I may ask? Trys
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Trys, my prolactin levels now are around 90 (17 being the norm). However, at my diagnosis (a year ago) they were around 4500 (more than 300 times the norm). Cabergoline does a great job in reducing the levels and it also shrinks the tumor.
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My tumor was 4cm x 3cm x 4cm. It is about half that size now after debulking surgery/radiation/drugs. My levels are now normal after 6 years of treatment.
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ronwagner,
are you on Pegvisomant now?
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That was one heck of a tumour Ron, so glad it has shrunk and your levels are in the normal range.
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mine was 9mm now it is 3mm. has shrunk using somatuline auto gel 60mg.
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