What is Acromegaly

Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). ...

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Advice:
Somavert (Pegvisomant)
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Hi,

I am thinking of adding this medication to Somatulin to normalize the levels.

Is anyone on this medication or considering it? What has been your experience?
Posted on 01/24/09, 09:01 pm
24 Replies | Most Recent Add Your Advice
Reminder: This is a support group for Acromegaly. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Advice:
Email me when others reply to this topic help
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Reply #21 - 06/10/09  3:41am
" Hi Northwest,

Im sorry that you feel lousy on this drug, when you say you are quitting the drug, are you going on other medication? "
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Reply #22 - 06/11/09  11:46am
" sorry Yarick I see that I never answered your post, We have alsobeen given the go ahead for pegvisamont, it will take a few months, also levels are not coming down quick enough,Hope things are good for you at the moment, My daughter is a little better, so this is a plus, they also said they may mix octreotide and Peg together, I wonder why, im away for a week, speak soon "
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Reply #23 - 06/12/09  1:33am
" i just wanted to update on my journey with somavert. it started out great...it dropped my ifg1 immediately i felt no ill effects. since then i have been getting swelling at the injection sites called lypohypertrophy
(which is a build up of fat) and these swellings have caused AWFUL stretch marks. at first i thought i should be happy the meds are working but this has gotten out of hand and i am in the process of switching. i was on it for 6 months, no liver problems or anything but during my thyroid went kaput....not sure if this is linked to the somavert but fyi. let me know if anyone has questions. "
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Reply #24 - 06/12/09  9:20am
" Thanks for sharing your advice! It is so difficult to learn anything about this drug without your help. "

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